Could 39 year old son have Asperger's and how do I broach the subject with him?

My son was a happy little boy, very inventive and artistic – had a wonderful sense of fantasy.  He would play with lego and build the most amazing towns all over his bedroom floor.  He has an older sister, they always got on well – more like twins.  I never ever worried about him.  He was quite shy, but not anything that I worried about. When he hit 16 he turned into a moody monster – I thought it was just him being a teenager.   As he became an adult and things didn’t improve, I thought he may be bi-polar.  He went to university, but being more artistic than academic, chose the wrong degree course, got very depressed and took an overdose. 

In the years that followed he applied to join the police force, wanted to join the marines, and applied for jobs that were always extreme and almost like he wanted to prove he was a man – he recently wanted to be an air traffic controller and passed all the tests until it came to psychometric testing – this seems to be the point where he always fails. 

He used to ask to borrow money from me and once when I refused to lend, he became verbally aggressive. When he was in his late 20s, I suggested that he may be bi-polar and he hit the roof.

The worst thing that has happened is that I had cancer and was seriously ill for a year.  In that time his wife had a miscarriage and later went on to have another two miscarriages.  I was still recovering from cancer and maybe didn’t understand how he was not able to cope emotionally with these two traumas.  It was after that that all hell broke loose.  He started sending me horrendous text messages, was so verbally abusive and at one point pushed me out of his house, screaming in my face.  We ended up not speaking for 4 years and he broke my family apart as they all defended him and said as his mother, I should put all of this right.  My partner, who is not his parent now refuses to have him in our house because he is so verbally abusive towards us both. 

Where are we now?   He has a 5 year old daughter, lives round the corner from me and we are speaking.  But, he has re-written history, says I was an awful mother.  He says I’ve lied to him ( I think about Father Christmas), tells his daughter there is no such thing as make believe, and everything that he does or says is literal.   If I disagree with him about anything, he says I can never admit when I’m wrong.  He sees the world in a very black and white way and there is nothing in between.  My dad has recently had a heart attack and is about to have a double bypass.  When I told him this, he showed no emotion at all.  When I visit him, depending on his mood, he will either speak to me or ignore me.

People find him odd, and can’t relate to him.  They find him rude, weird and often inappropriate.  He is often very childlike and it is like communicating with teenager.

I cry everyday about him but can’t seem to find a way to be at peace with him.  I often think he hates me, yet he seems to be insistent that I am in his life, but on his terms.  Because he is not allowed to come to our house, he has now decided he will make the rules up (he literally said this) – he emailed me banning me from his house and from seeing his daughter.

His wife, who has a nephew that is autistic, told me several months ago that she thinks he has Asperger’s. I have questioned this on many occasions, along with bi-polar, BPD, narcissistic disorders. 

He is one of the most artistic people I have ever seen – I think he is a savant.  He draws in the most minute detail, and can draw perfect circles and straight lines without using any drawing instruments.  He makes clay models with the most beautiful detail in them.  He becomes so absorbed in his artwork that he stays in his office for hours on end, even sleeps in there and I know he doesn’t sleep with his wife.  She tells me that he never cuddles her or makes her feel loved.  I now worry about their marriage lasting.

I feel he is living half a life and can’t find anyway in to his world that is not like anyone else’s.

He is either on the ceiling, or down on the floor and in the depths.  I am fearful for him and often feel that I haven’t got him forever.  I love him very much, but I am finding him increasingly difficult to be around. 

Parents
  • I’m so sorry you’re going through this. It’s utterly heart-breaking when someone you love and feel responsible for so evidently needs help but refuses to engage.

    It’s not quite the same thing, but my mother has schizophrenia and has virtually no insight into her illness. She has also been especially withdrawn for the last 2-3 years, and I have literally run myself into the ground trying everything to help her, including writing to her doctors. She rarely leaves the house. She’s already missed more family Christmases than I can count, but more recently has cancelled holidays with Dad, failed to show up to go wedding dress shopping with me (her only daughter), and has missed my gorgeous nieces’ birthdays and christenings (her only grandchildren). Before she got ill, Mum was the most family/kiddie-orientated person you’ve ever met, so I know this isn’t her.

    I really do understand how much pain it causes everyone around them. I’m not a mother, but it must be utterly devastating to you for your relationship to be stuck in this state with your baby boy.

    The tragic, frustrating thing is, there’s very little you can do about it. I know that’s not what you want to hear, but possibly, deep-down, it’s what you already know. A few years ago, I spent about 6 months having private counselling to come to terms with some of the traumas I’d suffered pre-ASD diagnosis, and one thing my counsellor said was this: “You can spend the rest of your life doing everything you possibly can to help your Mum, but the reality of her illness is that it will make very little (if any) difference. You just need to get on with your own life.”

    I know ASD and schizophrenia are completely different disorders, but my gut feeling is that the advice is still sound. At the end of the day, he is an adult, and it is up to him to decide how and when he seeks help if his life isn’t turning out how he’d like. You can’t help someone who doesn’t want to be helped; it just doesn’t work like that, unfortunately.

    I am really sorry you’re stuck like this. All I would add is, be there with love and without any judgement if and when he’s ever ready to accept some support. I live about 140 miles away from my parents now, and it’s hard knowing Dad is caring for Mum alone, but we speak regularly and I do what I can to support him emotionally; and I’ll be there for Mum if and when she tales an interest in me again.

    Take good care of yourself. We only get one life, so don’t forget to live yours.

    Nessie xx

  • Thank you Nessie - it is heartbreaking.  I lost my mum last year - she had Alzheimers and often didn't know me.  I could cope with that though, because we have more understanding of it.  With my son, I sometimes feel I'm losing my coping skills.  I do have a good counsellor though and I am grateful for that.  It is somehwere to offload.  I know that my son has to help himself and I can take a step back sometimes.  What I struggle with is that he wants me in his life, but he is so abusive and can't understand why I then get upset with him.  I try not to personalise what he says, but he can be very personal. 

    It's all very difficult isn't it.  We never want to hear the bits about 'there's very little you can do about it', but you're right and I know and understand that.  But it is still very frustrating and painful isn't it.

    But thank you for your warm response.  Sometimes I feel a little bit sad at what I thought was a lovely relationship with my son but has ended up feeling like a battle - it is nice to know other people have the same feelings. 

  • You’re welcome. I really do hope you find a way through as a family. Xx

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