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New diagnosis- starting to get a bit wound up

Breadpud

Hi all,

I'm four weeks into being diagnosed. I'm 50+. Just wondered if you went through a negative patch soon after getting a diagnosis. I'm in a strange place at the moment (stranger even than normal everyday life of course) I've started unconsciously reevaluating all my past, post-diagnosis (tiring) I guess this is a normal reaction? 

  • Yes, what you're experiencing is very common indeed for those us receiving a diagnosis later in life, and you'll find many people here who have been through very similar experiences. Ruminating about past events which can now be viewed in a different light is very common. Coming to terms with decades worth of unanswered questions, and uncertainty about how responsible we should feel for past errors and misunderstanding does take some time, and it is very tempting to overwhelm ourselves by trying to answer them all at once. It can be quite a roller-coaster ride of different emotions for a while, but things will settle down in time.

    Try not to feel rushed into explaining yourself to the people around you until your feelings have settled a bit, and try to remember that your diagnosis hasn't fundamentally changed you at all. It's not an indulgence to allow yourself a bit of time immersed in hobbies or interests to give your mind a bit of a rest.

    The people here are wonderfully supportive and knowledgeable, and there really is no such thing as a "stupid question". Forums like this one were a massive help when I was going through that process - not just reading other people's experiences, but also gaining a sense of perspective by trying to put my own feelings into writing. So if there are any particular issued which are bugging you, don't be afraid to come and ask rather than letting them fester.

    Best wishes.

  • yes i was in shock for a week or so then unstable for about another 2 weeks but now i feel better than ever. Yes more and more memories where triggered from my past and in great detail. Right back to early primary school. But now I feel stronger than ever, it is like a victory for me to find my true issue. Yes its a normal and probably very good reaction. just be nice to yourself for a while. Dont take on any new challenges or work for a while. Dont get drunk or get into arguments or anything that would upset you. 

    Buy yourself presents, nice food treat yourself for a while :)

  • Hi. I'm mid-twenties and I'm still waiting for my assessment. I can't speak from personal experience, but I have seen lots of people on this forum discussing similar emotions after diagnosis.

    Try not to get frustrated with yourself - it's perfectly normal to have mixed feelings. Just take care of yourself and keep talking to people - even if it's just offloading here.

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