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What have you achieved from getting diagnosed?

Kitsune

I was diagnosed with ASD (Aspergers) in December of last year and the last week or so have been feeling a bit despondent about it. I spent a few years prior to assessment and diagnosis focused on analysing my life and getting the diagnosis, like somehow getting a diagnosis would ‘fix’ me. Since diagnosis I’ve thrown myself into ‘being autistic’ and I spend a lot of time socialising with other autistic people which works well actually. But I can’t help feeling that I haven’t really achieved anything by getting a diagnosis, it might explain why I am the way I am but it doesn’t change anything, it doesn’t change me, it doesn’t make me any less weird! I’m just the same person that I’ve always been, life carries on regardless!

So I just wondered, what do other people think that they have achieved from getting a diagnosis?

Parents

  • Hi,

    I was diagnosed earlier this week after months of am I or aren't I waiting. Since the diagnosis I've made contact to join a social group to start with. The amazing thing to happen though, was today when I agreed with family there would be agreed phrases both ways for when I find it hard to take something in and understand, or likewise, when the family need me to stop and clarify or explain something. Because there has been uncertainty leading up to the diagnosis and I've led a fairly normal 50 odd years life, I now have confidence to build on a somewhat strained family relationship for many years.

    Today, in a hospital appointment my mother even got to see what happens when too much verbal information is given out to me in one go and she saw me getting muddled with it- I had the chance to explain to her that was an example of situations I don't process very well. It's like since the diagnosis, we're all starting to take note of each other. I'm very pleased some new strategies are happening so quickly.

    But apart from that, it's life as normal and I feel I want to keep it that way. 

  • in reply to Breadpud

    Hi, Did your assessment process take a long time? I’m really pleased for you that you’ve found a way to improve and move forwards with your relationship with your family. 

    Too much verbal information in one go is an absolute nightmare. My husband is the world’s worst for this, and he’ll do it at the absolute worst time too. When I’ve just woken up or when I’ve just got in the door from work, he’ll just start bombarding me with tons of information! I simply can’t handle it, let alone process it. I either zone out and switch off or switch my hearing aids off so I physically can’t hear him or go and shut myself away in my study. The frustrating thing is, if he just let me wake up or get in and settle in and then told me  one thing at a time then I might be able to take it in. Actually scrap that, I’m actually loads better with written information than verbal information, that way I can read it and process it at my own pace!

  • in reply to Kitsune

    It took 14 months from going to see my GP to diagnosis. 
    Yes, thanks. I've felt like a bit of of a drag and a worry on the family over the years. Some of them will need more education than others. Siblings! tut!
    I'm divorced and luckily like me, my ex wasn't a morning person. But in the past, in any relationship, it had its difficulties with communication. (Is that a strategy you'll suggest to your husband- to write things down?)
    I also have reading comprehension issues and will need to get that sorted out.

  • in reply to Kitsune

    :) excellent. I'm on an impromptu forum day today and is good to put questions out there- I'm learning things from other viewpoints too.  But I must make a move soon and get some stuff done. But yes, I'm glad it took a short time to diagnosis- I've heard that in some parts it can take a lot longer for the process. 

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  • in reply to Kitsune

    :) excellent. I'm on an impromptu forum day today and is good to put questions out there- I'm learning things from other viewpoints too.  But I must make a move soon and get some stuff done. But yes, I'm glad it took a short time to diagnosis- I've heard that in some parts it can take a lot longer for the process. 

Children
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