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Applying for PIP

NAS63275

Hello

I have a 24 year old son who was diagnosed with Semantic Pragmatic language disorder as a child (goodness knows what it's called now).

We are going to apply for PIP but i confess i'm nervous. He received DLA in the past but im ashamed to say we didnt keep this up. He's overcome a lot (with support both at home and school) and I suppose we'd hoped he'd be in work and more independent by now. It's obvious this wont be the case. He worked for my husband after leaving school and coped well under supervision but he needs a way forward now (we all do actually as we're not getting any younger)

As there was a gap in receiving benefit, will that go against him?

What evidence will he need to produce?

He presents quite well to others but we still need to tell him when to wash, clean clothes, take meds, any self care really. I can't see him ever being independent without support as he'd never pay a bill. He can travel alone on regular journeys but only after he's been accompanied the 1st time. An unexpected incident (like a bus breakdown) could mean ill advised decisions.

Im sure youre familiar with this scenario. I think i just need some assurance. He's been to local job centre who have been helping him with CV etc. but theyve also suggested he apply for PIP.

I should add that his mental well being has been a concern in the past, most particularly when his sister went to uni. The impact this had on his own self worth was heartbreaking and worrying and prompted us getting him onto a local college course which has helped enormously. 

Thank you in advance for your patience and help.

Parents

  • PIP is based around life impact.    It is split into sections regarding getting around, washing yourself, feeding yourself, hygiene, using the toilet, physical mobility, communication skills etc.  Points make prizes!

    You need to be aware of a few things before you embark on this process:

    1 - DO NOT TRUST THE DWP!!!!!!  

    2 - Make sure EVERY communication with them is noted down and all post is sent special delivery - they lie about everything and deny ever receiving letters, they deny ever talking to you so keep a detailed diary, make sure you get names and direct telephone numbers whenever you speak to them.

    3 - They pre-date letters so they arrive with you only a couple of days before your deadline to reply expires - every time!  Be prepared!   They claim that they have leeway because they're short staffed???  Doesn't apply to you though - they are looking to trip you up with process errors or by missing dates..

    4 - The person doing your interview is NOT YOUR FRIEND - They are trying to save government money - they are trying to get you to accidentally minimise your problems - so with no problems, it means no points which means no PIP.   They even twist and lie about what was said in their written interview report.    Make sure you go with your son - he will be really easy to manipulate if he's on his own. - take notes of the questions asked and your son's replies (you're not allowed to record it)   Make sure you tell them beforehand that you will be doing an information request after the interview to make sure the report is accurate.

    5 - Make sure you get fresh letters from your GP and any consultants BEFORE you instigate the process or you will run out of time (30 days from initial phone-call to them).

    6 - Be ready for them to refuse you - you have 30 days to appeal/add more information - expect it and be ready!

    7- They sometimes refuse your appeal just to kick the can down the road and make you go to a tribunal - this process could take 18 months.    Be ready to ask for an urgent appointment due to stress and anxiety and deteriorating health/suicide risk because of the stress.

    8 - DO NOT GIVE UP - they make the system difficult to make the weak fall by the wayside.

    They are paid over 40k/year and their medical training may have a VERY low level of medical training and NO CLUE about autism.   They will, of course, try to imply that they have full medical qualifications - most don't.

    They claim ignorance of everything - the more your son tries to explain, the more he can obviously communicate.    It's a trap!!!!

Reply

  • PIP is based around life impact.    It is split into sections regarding getting around, washing yourself, feeding yourself, hygiene, using the toilet, physical mobility, communication skills etc.  Points make prizes!

    You need to be aware of a few things before you embark on this process:

    1 - DO NOT TRUST THE DWP!!!!!!  

    2 - Make sure EVERY communication with them is noted down and all post is sent special delivery - they lie about everything and deny ever receiving letters, they deny ever talking to you so keep a detailed diary, make sure you get names and direct telephone numbers whenever you speak to them.

    3 - They pre-date letters so they arrive with you only a couple of days before your deadline to reply expires - every time!  Be prepared!   They claim that they have leeway because they're short staffed???  Doesn't apply to you though - they are looking to trip you up with process errors or by missing dates..

    4 - The person doing your interview is NOT YOUR FRIEND - They are trying to save government money - they are trying to get you to accidentally minimise your problems - so with no problems, it means no points which means no PIP.   They even twist and lie about what was said in their written interview report.    Make sure you go with your son - he will be really easy to manipulate if he's on his own. - take notes of the questions asked and your son's replies (you're not allowed to record it)   Make sure you tell them beforehand that you will be doing an information request after the interview to make sure the report is accurate.

    5 - Make sure you get fresh letters from your GP and any consultants BEFORE you instigate the process or you will run out of time (30 days from initial phone-call to them).

    6 - Be ready for them to refuse you - you have 30 days to appeal/add more information - expect it and be ready!

    7- They sometimes refuse your appeal just to kick the can down the road and make you go to a tribunal - this process could take 18 months.    Be ready to ask for an urgent appointment due to stress and anxiety and deteriorating health/suicide risk because of the stress.

    8 - DO NOT GIVE UP - they make the system difficult to make the weak fall by the wayside.

    They are paid over 40k/year and their medical training may have a VERY low level of medical training and NO CLUE about autism.   They will, of course, try to imply that they have full medical qualifications - most don't.

    They claim ignorance of everything - the more your son tries to explain, the more he can obviously communicate.    It's a trap!!!!

Children
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