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No idea what to do with my GP

NInagw3

It’s been a long and tedious battle with my GP. And it’s  gotten to the stage now where I have no idea what’s going on but the doctors aren’t helping at all! 

It took a few appointments for anyone to take me seriously, and I ended up spending hours putting together questionnaires and essays to help get the referral, only the doctors lost this paperwork and now they are demanding I hand more in but I’m a little uncomfortable entrusting that information again. Isn’t there a way I could hand the paperwork into the place myself? Or just keep it with my until my referral? My doctors are not  very good with sensitive information... 

Also, while they rang me to inform me that the paperwork had been lost, they proceeded to tell me that every referral they’ve ever sent before to try and get an autism diagnosis has failed... which doesn’t give me much hope. Should I go privately? Is there another service I can use? The doctors are saying they need this paperwork so they can get funding, but I thought you only needed funding if there wasn’t a service in the are? I live in bradford and there is a service called BANDS although Ive heard they have a 3 year waiting list, but there is also LADS in Leeds that take referrals from Bradford so why do I have to get funding? 

Im really confused and I’m really stressing out. All I want to do is get diagnosed so I can get help and try to go back to university! I’m starting to loose hope that I will ever find a way to cope :(  

Parents

  • Hmmmm… West Yorkshire NHS incompetence strikes again, or is the conspiracy theory correct that they are avoiding as many diagnosis as possible for financial reasons. I am not far from you and spent two and a half years battling with my GP. The process should be that they seek special funding, which in my case they messed up and wasted 6 months. Then they will likely refer you to Manygates in Wakefield for an assessment, but again, my GP didn't send the required information. This your GP has to do so you will have to go through them and Manygates will not deal with you directly, nor do they take private applications. There goes another six months. By this point they had referred me for some anxiety therapy, so said they could not re-refer me for an assessment while that was ongoing. There goes another six months. After having the anxiety therapy they still weren't listening, and I listed out all my issues, but still they weren't interested. I raised an NHS complaint who liaised with all parties and said I should ask my GP to re-refer me, which they said they could not do before. There goes another six months. But surprisingly having being contacted by the NHS complaints people, all of a sudden my GP was willing to re-refer me. However, for whatever reason, possibly including the fact that my GP stated that I could talk and made eye contact, they refused me an assessment saying I wasn't obviously positive enough to warrant taking up their limited time. At that point my GP said that was it, and there was nothing more they could do for me.

    At this point I only needed to know for my own sanity so I went private, and although expensive was worth it. Two weeks later I had the answer I had waited years for and felt more at peace with myself than I ever have. Having said that, my GP said that if I wanted any support or benefits based on a diagnosis I would need that to be accepted by the NHS. Whether my private diagnosis is enough for them I don't know, but quite frankly I don't want their help and hope I never need it... In your case, you may need an NHS accepted assessment, so I would push for that first. Anything you give to them, keep a copy. If you don't hear anything when you should, chase them. If you're not happy, complain. Keep pushing and good luck.

Reply

  • Hmmmm… West Yorkshire NHS incompetence strikes again, or is the conspiracy theory correct that they are avoiding as many diagnosis as possible for financial reasons. I am not far from you and spent two and a half years battling with my GP. The process should be that they seek special funding, which in my case they messed up and wasted 6 months. Then they will likely refer you to Manygates in Wakefield for an assessment, but again, my GP didn't send the required information. This your GP has to do so you will have to go through them and Manygates will not deal with you directly, nor do they take private applications. There goes another six months. By this point they had referred me for some anxiety therapy, so said they could not re-refer me for an assessment while that was ongoing. There goes another six months. After having the anxiety therapy they still weren't listening, and I listed out all my issues, but still they weren't interested. I raised an NHS complaint who liaised with all parties and said I should ask my GP to re-refer me, which they said they could not do before. There goes another six months. But surprisingly having being contacted by the NHS complaints people, all of a sudden my GP was willing to re-refer me. However, for whatever reason, possibly including the fact that my GP stated that I could talk and made eye contact, they refused me an assessment saying I wasn't obviously positive enough to warrant taking up their limited time. At that point my GP said that was it, and there was nothing more they could do for me.

    At this point I only needed to know for my own sanity so I went private, and although expensive was worth it. Two weeks later I had the answer I had waited years for and felt more at peace with myself than I ever have. Having said that, my GP said that if I wanted any support or benefits based on a diagnosis I would need that to be accepted by the NHS. Whether my private diagnosis is enough for them I don't know, but quite frankly I don't want their help and hope I never need it... In your case, you may need an NHS accepted assessment, so I would push for that first. Anything you give to them, keep a copy. If you don't hear anything when you should, chase them. If you're not happy, complain. Keep pushing and good luck.

Children
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