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No idea what to do with my GP

NInagw3

It’s been a long and tedious battle with my GP. And it’s  gotten to the stage now where I have no idea what’s going on but the doctors aren’t helping at all! 

It took a few appointments for anyone to take me seriously, and I ended up spending hours putting together questionnaires and essays to help get the referral, only the doctors lost this paperwork and now they are demanding I hand more in but I’m a little uncomfortable entrusting that information again. Isn’t there a way I could hand the paperwork into the place myself? Or just keep it with my until my referral? My doctors are not  very good with sensitive information... 

Also, while they rang me to inform me that the paperwork had been lost, they proceeded to tell me that every referral they’ve ever sent before to try and get an autism diagnosis has failed... which doesn’t give me much hope. Should I go privately? Is there another service I can use? The doctors are saying they need this paperwork so they can get funding, but I thought you only needed funding if there wasn’t a service in the are? I live in bradford and there is a service called BANDS although Ive heard they have a 3 year waiting list, but there is also LADS in Leeds that take referrals from Bradford so why do I have to get funding? 

Im really confused and I’m really stressing out. All I want to do is get diagnosed so I can get help and try to go back to university! I’m starting to loose hope that I will ever find a way to cope :(  

Parents

  • Sorry to read about your situation with your GP. It's hard enough trying to even pluck up the courage to go and visit your GP and mention that you may have an Autism Spectrum Condition never mind being messed around not knowing what's going on.

    Ideally you would have a GP who treats you as a patient and not just a number because this way your cries for help would be better understood. I am fortunate to have found a GP with whom I feel I am treated as a valued patient and I feel very lucky. I dread the day he retires or decides to change surgery because hes the most understanding GP I've ever had.

    In my case it was a matter of being told off my wife I may be on the spectrum after living with me and putting up with me being difficult and also when I researched about autism all my struggles seem to come together like a puzzle. I decided to take an AQ test and scored 48/50. This prompted me to take other autism quizs and print off my results to show my GP.

    I explained I think I may have an ASC and would like to get assessed. We had a chat about the benefits and how it would help me and he said he would look into it. Thankfully he called me a few days later and said he'd found me a place out of town and I was very grateful.

    After waiting 18 months I was assessed and diagnosed with Aspergers. I feel very lucky to have such an understanding GP and also lucky to have a great ASC Clinic to assess me. 

    I really do wish you all the best with getting a referral and with finding a specialist who is great at assessing for autism. 

    Only advice I can give is don't give up until you get the answers you are looking for.

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  • Sorry to read about your situation with your GP. It's hard enough trying to even pluck up the courage to go and visit your GP and mention that you may have an Autism Spectrum Condition never mind being messed around not knowing what's going on.

    Ideally you would have a GP who treats you as a patient and not just a number because this way your cries for help would be better understood. I am fortunate to have found a GP with whom I feel I am treated as a valued patient and I feel very lucky. I dread the day he retires or decides to change surgery because hes the most understanding GP I've ever had.

    In my case it was a matter of being told off my wife I may be on the spectrum after living with me and putting up with me being difficult and also when I researched about autism all my struggles seem to come together like a puzzle. I decided to take an AQ test and scored 48/50. This prompted me to take other autism quizs and print off my results to show my GP.

    I explained I think I may have an ASC and would like to get assessed. We had a chat about the benefits and how it would help me and he said he would look into it. Thankfully he called me a few days later and said he'd found me a place out of town and I was very grateful.

    After waiting 18 months I was assessed and diagnosed with Aspergers. I feel very lucky to have such an understanding GP and also lucky to have a great ASC Clinic to assess me. 

    I really do wish you all the best with getting a referral and with finding a specialist who is great at assessing for autism. 

    Only advice I can give is don't give up until you get the answers you are looking for.

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