report for others to see

I got a diagnosis earlier this year, and the report I received was contained mainly the things that we talked about during the assessment meeting, and a lot of the report contained excerpts from the personal history I wrote for the assessor. The final report was sent to my GP and I have an exact copy of it as well. I feel that the report is way too personal to give to employers, such as containing some embarrassing examples of my childhood. I'm not sure how to get a report that I can give to employers? I've heard that some clinics do give out a report that can be shown to others, but not every clinic does that. I'm not sure what to do when they ask for medical evidence. Thanks in advance if you can share any relevant experiences!

Parents
  • When answering the pre-assessment, I asked for a degree of confidentiality, as there was an older person who I preferred to keep the diagnosis from; to avoid any (completely) unnecessary blame. Not the same as work, of course. But the main thing was that request for confidentiality was respected.

    It is comparatively easy these days to make alternative versions of text reports, So I would imagine most assessors could easily access your original report and make some modifications.

    I also asked for my experience of a traumatic experience to be omitted, because I preferred to keep it confidential from an insider witness of some earlier events; and because I knew that person would want to read the report. So my comment on that event on the questionnaire was very brief. I added to that by verbally telling the assessor that the event had certainly had repercussions, but that I had no current desire to discuss the details - having long come to terms with the event. The way I look at it is this: A diagnostician is NOT a psychoanalyst. (A largely outmoded role, anyway.) Why spoil a comparatively positive appointment by reliving pain that was now long past its sellby date? So brief sympathy was expressed, but the vulnerability was definitely noted - as intended.

    Agreed that not every clinician works in the same way, but I feel most would be inclined to cooperate.

    Something to add to the above, though. You may have to tell your employer that adult diagnosis is largely based on interview, because the medical records are rarely very revealing; except perhaps in slightly more recent times. And there is also not much observation of behaviour, as many adults tend to adapt and mask. But perhaps that information could also be briefly indicated in an amended report. It was my understanding, even before the appointment, that the report could be changed for different readers.

Reply
  • When answering the pre-assessment, I asked for a degree of confidentiality, as there was an older person who I preferred to keep the diagnosis from; to avoid any (completely) unnecessary blame. Not the same as work, of course. But the main thing was that request for confidentiality was respected.

    It is comparatively easy these days to make alternative versions of text reports, So I would imagine most assessors could easily access your original report and make some modifications.

    I also asked for my experience of a traumatic experience to be omitted, because I preferred to keep it confidential from an insider witness of some earlier events; and because I knew that person would want to read the report. So my comment on that event on the questionnaire was very brief. I added to that by verbally telling the assessor that the event had certainly had repercussions, but that I had no current desire to discuss the details - having long come to terms with the event. The way I look at it is this: A diagnostician is NOT a psychoanalyst. (A largely outmoded role, anyway.) Why spoil a comparatively positive appointment by reliving pain that was now long past its sellby date? So brief sympathy was expressed, but the vulnerability was definitely noted - as intended.

    Agreed that not every clinician works in the same way, but I feel most would be inclined to cooperate.

    Something to add to the above, though. You may have to tell your employer that adult diagnosis is largely based on interview, because the medical records are rarely very revealing; except perhaps in slightly more recent times. And there is also not much observation of behaviour, as many adults tend to adapt and mask. But perhaps that information could also be briefly indicated in an amended report. It was my understanding, even before the appointment, that the report could be changed for different readers.

Children
  • Yes, I think you were smarter when deciding what to tell and not tell the assessor. I was naive and just told him everything.

    I've already been assessed a while ago, and some of the embarrassing events have already been put in the report. I'm not sure if I can contact the assessor to make any modifications now, since the time has passed... and it's already been sent to my GP. 

    I guess the "crossing out stuff with a black felt tip marker" is a good idea that I might do.