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Everything I know about me that's relevant............

I'm done with Christmas Cards

Just collated this list..........honestly I will stop thinking about it soon & getting it down here will help get my mind off it (stops me worrying that I'll forget something!).

Still haven't had official confirmation of my ADOS date (told by phone last week that it's mid July) but will be glad to get it done.

Still can't imagine how ADOS will fill in the gaps, as it focusses on Social aspects rather than RRBs ..................

  • Suggestive of positive DX for Autism
    • Confirmed by NHS diagnostic report:
      • Qualitative impairments in in social and emotional reciprocity and sustaining relationships.
      • Definite difference in sensory sensitivity across Tactile, Taste, Smell, Visual / Auditory and Auditory Filtering.
      • Problems with sensory integration
      • Fleeting limited eye contact & lacked normal eye contact as a child
      • Flat tone of voice
      • Complex head / vocal / eye tics as a child (sniffing, grunting, blinking, head shaking)
      • Known as a "little professor" at primary school (I would correct teachers when they got scientific facts wrong)
      • AQ 41 (T>32), CBS 7 (T<30),
    • Circumstantial / corroborative signs:
      • EQ 16 (T<30),  RAADS-R 145, Aspie Quiz 129ND/86NT

      • Score on the RBQ2a (a new standardised self-report on Restricted and Repetitive behaviours in Adults) is 1.6. This is 0.53 standard deviations away from the ASD score in the reference, and 1.84 standard deviations away from the NT score.

      • Alexithymia
      • Aphantasia
      • Poor Affective Empathy
      • Take statements literally & rarely “read between the lines”. Find intentions hard to perceive.
      • Focus on self & little interest in others.
      • Perseveration & perfectionism
      • Succession of solo, technical hobbies often recurring
      • Chronic anxiety & depression both driven by obsessive rumination
      • Need for certainty; anxiety produced by uncertainty
      • Strong preference for routine (avoid holidays & events, same lunch every day at work)
      • Burnout after working with people
      • Alert to mistakes in detail
      • Skin picking, leg bouncing, chest rubbing
      • Unconscious / conscious throat / nose noises (grunting/snorting/sniffing)
      • Seek refuge in “flow” state through hobbies & interests & creative & abstract thoughts
      • Logophilia (I so wish I had studied Latin at school!)
      • Executive function problems; working memory, planning, impulse control, directing attention
      • Mild synaesthesia
      • Palinopsia
      • Breech birth
      • Sleep paralysis
  • Suggestive of negative DX for Autism:
    • Noted by NHS diagnostic report:
      • Good facial expressions and expressive hand gestures
      • Don’t appear to have difficulty with receptive expression
      • Insufficient evidence of Stereotyped and/or Repetitive Behaviours
      • Unable to determine significant difficulties around rigidity and adhering to routine
      • SCQ score = 11 (T>16)
    • No Prosopagnosia
    • Good judge of character (noted by colleagues)
    • Good Cognitive Empathy & theory of mind
    • Good fine motor skills
    • Good “big picture” / context thinking

EDIT 5th June 2019 - added a few extras to the list and decided I'm going to print out and show my GP when I see her later this month...........

Parents

  • Yeah, also 'stereotyped/repetitive behaviours' - I wear a short-sleeved white shirt, tie and smart trousers Mon-Thu even though my workplace has a casual dress policy... so does this 'count'... my psychologist says 'Yes', on the basis that a Bank Holiday Monday ruins my pattern (I wear a shirt twice) as does not having a shirt available on a 'shirt' day, to the extent I seriously considered being late to work so I could, wash, dry and iron a shirt.

    Equally, my psychologist spoke about a patient who (contrary to common wisdom about people with autism) does go abroad - but they always book the same room in the same hotel... so on the surface they 'don't look autistic' to use that ld chestnut - but it's because they've learned to camouflage...

Reply

  • Yeah, also 'stereotyped/repetitive behaviours' - I wear a short-sleeved white shirt, tie and smart trousers Mon-Thu even though my workplace has a casual dress policy... so does this 'count'... my psychologist says 'Yes', on the basis that a Bank Holiday Monday ruins my pattern (I wear a shirt twice) as does not having a shirt available on a 'shirt' day, to the extent I seriously considered being late to work so I could, wash, dry and iron a shirt.

    Equally, my psychologist spoke about a patient who (contrary to common wisdom about people with autism) does go abroad - but they always book the same room in the same hotel... so on the surface they 'don't look autistic' to use that ld chestnut - but it's because they've learned to camouflage...

Children
  • in reply to Original Prankster

    Ahhhh..... yes, the failure to dig deep enough. "You go abroad, so you can't be autistic!" (But I go to the same room in the same hotel and travel with the same person, go to only one beach and always buy a bacon sandwich from the guy by the second breakwater on the beach).

    The one in my report that niggles me is "You completed a PhD and were able to structure the work yourself. This involved detailed organisation plans." (No, I went to the same lab every day, parked in the same car park, ate the same lunch from the same shop, got stressed if I needed to ask the workshop to make something for me and moved heaven and earth to make it myself instead, and planning consisted of following my nose writing and rewriting software until something worked, then I bought myself a portable computer and wrote it up at home).

    As far as clothes go, I wear the same outfit for as long as I can once I find something I'm comfortable with because the change is annoying (different feel) and if it's not broke why fix it? Every time my wife stresses over choosing something for tea, I tell her that the ideal solution is to pick 13 meals that we love and rotate them in sequence; that way we wouldn't eat the same thing on the same day for ages but would never have to worry about what's next :-).

  • in reply to Original Prankster

    I got chatting to an OCD researcher yesterday - a lot of the things I thought were just sensble are classed as obsessive by NTs.   Things like arriving early to appointments and doing things properly and fully are *not normal*. 

    Who knew?

    After talking to her, I'm having to re-evaluate a lot of my behaviours as it appears NT's sense of 'normality' is way worse than I had imagined.