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Interpreting results of Short Sensory Profile (Winnie Dunn)

I'm done with Christmas Cards

Hi, 

Can anyone help me to interpret these scores from my diagnostic report?

My report also states "You ... show problems with sensory integration".

I'm starting to think that this is at the root of everything that's bothering me. Combined maybe with alexithymia, I think this has played quite a part in my social avoidance and combined with the other conclusion from my report "You show qualitative impairments in social and emotional reciprocity, non-verbal communication deficits as well as difficulties maintaining and sustaining relationships", this may be all that I need from the diagnostic process.

I.e., a positive DX for ASD would give me a framework to interpret my life through, but to be honest it is the sensory and social overwhelm that are the key difficulties I face. Given that my employer has allowed adjustments for this, and if I ever needed it the Equality Act 2010 works off impairments and legal reasonableness rather than any diagnostic label, getting a DX for ASD is probably not practically significant for me. I'd still like the wiring diagram and owner's manual for my brain though, but I know that no-one has that :-).

  • in reply to Kitsune

    Yes exactly. The ADOS seems to be the best available as far as standardisation is concerned and is why it was developed (?).

    I think I'm reading that whilst the ADOS doesn't address RRBs, the ADOS-2 does?

    Yes my ADOS is coming up in July apparently (I'm waiting for the official invite).

    I'm really unsure if I have

    • No repetitive behaviours
    • Repetitive behaviours expressed atypically (i.e. obsessive thoughts in place of lining up toys)
    • Repetitive behaviours that aren't visible (suppressed and/or internal)

    The interview and process did seem fixated on lining up toys as a child and being *unable* to deviate from a routine. Despite my saying that I really don't *like* deviating from my routine, to the point that I don't like holidays for e.g., this didn't seem to be enough.

  • in reply to I'm done with Christmas Cards

    That's good that you found some information to help you to interpret the sensory profile results. 

    Do you consider that you do have repetitive behaviours? I think we're back to what I said before about there needing to be a standardisation of assessment procedures across all diagnostic centres. My ASD assessment was the ADOS, the scored components of which are 'social interaction' and 'communication and language'. It was my score of 12 based on these two components that led to me getting a verbal diagnosis of ASD less than an hour later. Don't get me wrong, I have plenty of repetitive behaviours, but they did not count towards my score on the ADOS or therefore my diagnosis. Honestly, with these centres the right hand really does not know what the left hand is doing!

    You have your ADOS assessment coming up don't you? Hopefully that will sway things in favour of an ASD diagnosis.

  • in reply to Kitsune

    Yes I think so, it's one authored by Winnie Dunn & I googled it and found some info about thresholds etc. 

    I'm going to keep pushing for everything to be considered, somehow. Then if I get a negative DX I'll at least feel confident that it's a true negative.

    But I would have thought that if I had everything except repetitive behaviours, this would be recognised as some other syndrome - it appears not to be. It seems odd that you can be quite limited by sensory troubles and social deficits and be dismissed without a diagnosis of *something*.

  • Do you know what sensory profile questionnaire they used? If you did maybe you would be able to find it on the internet along with how it is scored? 

    I think it is wise to pursue an ASD diagnosis. It might not seem relevant now but it may be relevant in the future with regards to healthcare provision, travelling from airports and all kinds of other things.

    Hope this helps.

  • in reply to I'm done with Christmas Cards

    I'm really glad to hear that you are not quite as anxious about it anymore, that's something good!

  • in reply to NAS39248

    Thank you. I'm definately going for the ADOS as you say it would be silly to stop now, I'm just getting a bit less anxious over the final result :-)

  • Hi I was asked to complete one of these for my daughter for the school social and communication team, I asked her all the questions and put her answers (seemed appropriate as it is her senses)  she is still awaiting assessment for asd her score was 97. I believe anything under 154 should be considered for sensory problems. 

    I would still pursue the ados as an asd diagnosis might be useful for making sense of your life and it seems pointless stopping half way through process as if you change your mind you would have to start over.