Onset of Loneliness since diagnosis.

Anybody else start to feel lonely for first time after diagnosis? Before my DX for autism and ADD I was OK with being alone, there are lot's of reasons why this is preferable but a major one is low self-esteem on account of a lifetime of screw-ups-and my inability to learn much from them. I am not absolving myself of guilt but now believe that given the state of my brain particularly the way it scrambles what I hear from people and what I understand about what is going on around me, it is not any kind of surprise at all that I should have amounted to so little.

All that being said, I am still just as screwed up and just as much hard work for others as before but as my new-found knowledge sinks in slowly,I feel less like a total waste of space and should really try to go out into the world a bit more and meet people-the trouble is that I have lived this way for so long I would not know where to start. Whenever I do try to chat to strangers, I only ever seem to get monosyllabic responses-if at all, it's almost as if I have the mark of Cain upon me ( I did write "Kane" originally-I've been having a lot of heretical and treasonous thoughts about Harry Kane  and his future at Spurs recently!)  The tension l experience with proximity to others probably shows itself in some way and I imagine they think I may be a psychopath struggling to control his killing urges. I have no small talk and I don't like looking people in the eye-or rather them looking me in the eye.

With all of that-plus a whole lot more I haven't even touched upon here I think you could forgive me for not holding out much hope of progress and I now feel officially "Lonely" for the first time ever and it sucks because there is nothing I can think of to break out of this hole. Despite knowing that I would still like to connect with people, hopefully some of those who know about the conditions and can be tolerant and understanding. Taking everything into account, I'd have to truly BE from another planet instead of just thinking that I do to seriously expect that anything like that could possibly happen.

Parents
  • Maybe try an ASD support group as an initial way to 'get into the world'?

    You'll be interacting with people who'll be more understanding... walk before you run kind of thing?

    Or, interact with people who have a shared interest - I find it a lot easier to interact with people at my triathlon club as you can trot out a few stock questions - 

    • "How's the training going?"
    • "Have you got any races coming up?"
    • Are those new trainers/bike/etc.?"

    Makes it a lot simpler

  • Hi there, thanks for your encouragement, I have looked for ASD groups near me but they cater for kids/parents only. Also I did ask on here if anyone was interested in starting a group but only got one reply and he/she did not respond to my answer (about what sort of group?) so that was the end of that. I do not know a single Autistic person and have no idea how we would react to each other if I ever met one as we are all highly individual and complex. I think I will have to get in contact with the ASD/ADHD unit in Epsom to see what they can advise-I just have to get out and start to live a bit. I have tried talking to people using very much the same line of friendly, gentle questions, most of the time I get a limited response-rarely rude but cool and as I can never seem to think of anything to add to keep the "chat" going without it feeling laboured and artificial (which it always feels like to me anyway) 

    The idea of spending time with others on the Spectrum and possibly some with ADD too is very appealing so will definitely get on to Epsom and give it a go.

  • Hi there, I realised after my own ASD diagnosis that the support available is really rubbish so I started my own group in my local area. We meet once a month to do an activity such as sketching/meditation/other and we have a Facebook group page and I meet up with some of the other ladies in the group individually outside of the group meet ups too. It’s really really good being able to spend time with other autistic people. I would highly recommend it Slight smile

Reply
  • Hi there, I realised after my own ASD diagnosis that the support available is really rubbish so I started my own group in my local area. We meet once a month to do an activity such as sketching/meditation/other and we have a Facebook group page and I meet up with some of the other ladies in the group individually outside of the group meet ups too. It’s really really good being able to spend time with other autistic people. I would highly recommend it Slight smile

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