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Tinnitus & possible hearing loss?

Pixiefox
over 4 years ago

I'm posting this on behalf of someone else who is highly likely autistic. They have had severe high pitched tinnitus for a few weeks which started 3 days after wax being removed by practice nurse (ear 'syringing') GP has arranged referral to ENT doctor but wait is nearly 5 months. I read that tinnitus is often linked to some hearing loss in certain frequencies (the brain tries to "fill in" the missing sounds) and if so, hearing aids can help. Free hearing tests are available at Specsavers, but hearing aids from them cost £495-£2500 plus, whereas they would be provided free from the NHS, but after a potential 5 month wait suffering from a debilitating constant sensory assault with the usual associated anxiety this causes for those of us on the AS spectrum (although it can of course also be a strain for people who are not autistic) Two types of anti-anxiety medications have been prescribed so far, but neither seem to help.

I just  wanted to ask if anyone has suffered with tinnitus, and if so whether hearing aids helped?

Parents
  • over 4 years ago

    So, my opinion is essentially very similar to what you say, but also I think that a kind of feedback loop can cause a sound or something to kind of just be wired into your head all the time.
    I have tinnitus myself, and I really do try to help make it go away--- I am revamping my health and have been for years. Oddly enough about 6 months ago for maybe a week my tinnitus stopped virtually completely, and I had no idea why. I didn't noticed whenever it came back, but it is back now. Not to say that isn't apart of the healing process- mine isn't so severe it bothers me, it's just there at night and really quiet places.
    If I had a suggestion for them, I'd say really a mental application would help. I think that honestly the approximate issue is a mental one no matter what way you look at it, so a hearing aid would help for maybe one reason being it helps you feel like what you hear is appropriate/makes you comfortable. (hard to describe what I'm saying in words...)
    Your friend may not like to hear it, but I'd tell them to try to actually relax and listen to the sound. Become comfortable with the noise and maybe even try to appreciate it like a ...I dunno, song, or waves. And get them to relax into the noise, is what I am saying. If you beat the noise away, you may not break the connections your brain has made--- it is hard for the brain scientifically to break old connections, but easier and intuitive for it to make new ones (ex, don't tell yourself your old way/self was bad, but make yourself a new better person to yourself)....so relaxing and experiencing the noise, experiencing it in a new way, and "connecting with it" rather than the obviously-not-working trying to "destroy" it may make a difference.

    If you'd show the comment to your friend I'd really appreciate it, just because I don't want their opinion about it to be missed. I think if they are willing they might try anything.

    You can always ask for details if they are interested. I'd be happy to help.
    Yw, hehe

Reply
  • over 4 years ago

    So, my opinion is essentially very similar to what you say, but also I think that a kind of feedback loop can cause a sound or something to kind of just be wired into your head all the time.
    I have tinnitus myself, and I really do try to help make it go away--- I am revamping my health and have been for years. Oddly enough about 6 months ago for maybe a week my tinnitus stopped virtually completely, and I had no idea why. I didn't noticed whenever it came back, but it is back now. Not to say that isn't apart of the healing process- mine isn't so severe it bothers me, it's just there at night and really quiet places.
    If I had a suggestion for them, I'd say really a mental application would help. I think that honestly the approximate issue is a mental one no matter what way you look at it, so a hearing aid would help for maybe one reason being it helps you feel like what you hear is appropriate/makes you comfortable. (hard to describe what I'm saying in words...)
    Your friend may not like to hear it, but I'd tell them to try to actually relax and listen to the sound. Become comfortable with the noise and maybe even try to appreciate it like a ...I dunno, song, or waves. And get them to relax into the noise, is what I am saying. If you beat the noise away, you may not break the connections your brain has made--- it is hard for the brain scientifically to break old connections, but easier and intuitive for it to make new ones (ex, don't tell yourself your old way/self was bad, but make yourself a new better person to yourself)....so relaxing and experiencing the noise, experiencing it in a new way, and "connecting with it" rather than the obviously-not-working trying to "destroy" it may make a difference.

    If you'd show the comment to your friend I'd really appreciate it, just because I don't want their opinion about it to be missed. I think if they are willing they might try anything.

    You can always ask for details if they are interested. I'd be happy to help.
    Yw, hehe

Children
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