DSM-V - Diagnosed But Would Now Not Be

I'm assuming with the DSM-V criteria, there are people out there who have been diagnosed but would now not be?

The reason I say this is that one of the criteria is that it must limit you on a daily basis; that means that all those on Youtube and on the forums who say they had no idea they were autistic would surely now not be diagnosed?

Where I'm going with this is I suspect I'm autistic but that the extent won't be enough for a diagnosis. So, is it therefore possible nowadays to be autistic but receive a formal diagnosis that you're not?

I'd have thought that you either are, or are not autistic, but of course it's a spectrum and it seems, (possibly because of increased awareness and pressure on the NHS) that the medical experts you see will know you are autistic but send you home with a diagnosis that you're not if it's mild.

Seems a shame but that's how it's shaping up to me.

Parents
  • Firstly, I think the diagnosis criteria has changed over the years based on clinicians experience even though the diagnosis manual hasn't changed for decades (DSM-4 was published in 1952). Perhaps it is related to awareness of autism? It used to be the case that usually only the most extreme cases are noticed and diagnosed, even though the manual does have Aspergers.

    Secondly, yes, it still could go the other way, such that there could be people who would have been diagnosed but now would not be. There used to be a category call PDD-NOS, some of which may show symptoms more closely resemble those of autism spectrum disorder, but do not fully meet all its diagnostic signs and symptoms. This is now removed in DSM-5. Furthermore, field test have indicated that some people who would have received an autism diagnosis under DSM-5 would now receive a diagnosis of social communication disorder (SCD).
    https://www.autismspeaks.org/expert-opinion/what-social-communication-disorder-how-it-treated

Reply
  • Firstly, I think the diagnosis criteria has changed over the years based on clinicians experience even though the diagnosis manual hasn't changed for decades (DSM-4 was published in 1952). Perhaps it is related to awareness of autism? It used to be the case that usually only the most extreme cases are noticed and diagnosed, even though the manual does have Aspergers.

    Secondly, yes, it still could go the other way, such that there could be people who would have been diagnosed but now would not be. There used to be a category call PDD-NOS, some of which may show symptoms more closely resemble those of autism spectrum disorder, but do not fully meet all its diagnostic signs and symptoms. This is now removed in DSM-5. Furthermore, field test have indicated that some people who would have received an autism diagnosis under DSM-5 would now receive a diagnosis of social communication disorder (SCD).
    https://www.autismspeaks.org/expert-opinion/what-social-communication-disorder-how-it-treated

Children
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