Hello. I'm new here and will introduce myself on the new here thread too. I'm after some advice please.
I recently visited my GP to discuss my concerns. I have been diagnosed with a 15q chromosome deletion. Lots of people with a microdeletion don't know they have one and it never effects them. I only know because my children got tested because they have lots of medical needs and adhd and autism diagnosis. They have the same deletion as me. I went to the GP because I know I am autistic. I have always known. But as a female I was good at coping and hiding it. My mum had 2 other children. One boy who was extremely violent and had meltdowns and violent episodes a lot and my sister who had mental health problems around food and self image. I wasnt forgotten but I was the quiet one who just managed.
Anyway, long story short, I wanted to discuss with the GP the chromosome results and getting some support. I was brushed off basically and told adult services are stretched to their limit and I've always coped fine until now so what's the problem?
I kind of agreed. The dr said I can identify as autistic and tell those I want to tell I am, and that there is no need for me to go through the lengthy process of a diagnosis.
Except now i have to go into hospital. I need to have my gallbladder out. I'm terrified. I have always been unable to cope with medical procedures, people, nurses, needles and being left alone without my husband or my mum. I have had 4 children but I was never left alone. I was always with my mum or husband. I never had to cope alone. I have a needle phobia. It's a genuine phobia and I have a meltdown everytime. I cant help it. I've tried everything to cope and i cant. Normally i have my mum or husband to help me through. But with my gallbladder i cant. My husband will be at work and my mum doesn't drive. Plus when you have a baby you're expected to have someone with you. I will not be allowed to have anyone with me as i am a fully grown woman having a routine operation.
I mean things like when i am sat in the ward and another person walks in with medication, I start to panic. Even if it's not for me. I cannot cope with this. Even typing I'm stressing.
My problem is I have no diagnosis. Nothing to tell people I cant cope. My GP is not at all willing to discuss this with me.
What can I do?
