• Replies 7 replies
  • Subscribers 82 subscribers
  • Views 2171 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

It's going to take longer than I thought

I'm done with Christmas Cards

I really wish I hadn't been pinning my hopes on being told my diagnosis at my evaluation interview (as some people have, apparently) or shortly afterwards.

When I was seen by the clinician, she explained that the notes she took would be reviewed with the consultant and the chance for this to happen comes round only once a month. Even then, the decision might not be definitive but require further tests. To be fair to the clinic, they did explain this when they saw me - it's taking a while to get my head round it I think.

So I checked with them and there was a meeting last week, but my case wasn't discussed. It might be discussed 1st week of April. The outcome then might be yes, no, or more tests needed (e.g. ADOS).

So I'm not realistically going to hear anything until mid April at the very earliest, and goodness knows how long it will be if I have to be scheduled in for ADOS.

Parents

  • Hang in there... It's hard, I was initially "It's not about the diagnosis..." but now I'm "I NEED TO KNOW!!!"

    Also, don't underestimate the impact of a diagnosis (whichever way it goes)...

    Would it help to find out the timeline if you did ned to be scheduled for ADOS? That way you could plan for the 'worst case' and set your expectations.

Reply

  • Hang in there... It's hard, I was initially "It's not about the diagnosis..." but now I'm "I NEED TO KNOW!!!"

    Also, don't underestimate the impact of a diagnosis (whichever way it goes)...

    Would it help to find out the timeline if you did ned to be scheduled for ADOS? That way you could plan for the 'worst case' and set your expectations.

Children
  • in reply to Original Prankster

    Thanks neekby. Yes ordinarily I would want to establish every possible timeline and calculate the 95% confidence limits and expected value of the time left to the end of the process :-). However, I always feel I'm being an annoyance when I call the clinic so I try to ask the bare minimum of questions. I think if it comes to needing further tests, I'm looking at months (& months) so I don't think that clarifying that will help at the moment (or at least, be worth the pain of calling again).