It's official-I'm one of you!

Had the second part of my assessment this morning, and have been given a diagnosis. It felt peculiar and wasn't quite sure how to react at first. Sinking in a bit more now, and I feel quite buoyant like a huge weight's been lifted off my shoulder (it's a relief to think the reason that I have so many problems with 'peopling' is because I literally have problems with it, and not just because I'm not trying hard enough or something) but also really tired. God, those assessments really take it out of you. I stupidly booked an appointment with my asthma nurse, so I have to go do that first, and then I might just go home and sleep.

I wish I knew what my ADOS score was, I really want to know and the report will be another few weeks-should have asked. Oh well. The guy said he appreciated my entire booklet with subtitled sections that I gave him because it made it really easy. Also, not 100% on what the official 'label' is-I don't know what the service uses but I think it's ASD or ASC, though the info the guy gave me was for Aspergers in my 'welcome pack' (that's what he called it! Smile)

Going to make me a 1-to-1 appointment at their advice service for a few weeks time (which I think is with the same guy, which is nice), and I'm on the waiting list for the post-diagnostic support group. Told my mum and my best friend (who knew I was getting assessed), and I think I shall tell my siblings and then leave it at that for now.

Parents
  • Um... If it is alright, I actually logged on to say this next sort of thing. Miss Boating-Taxonomist  --- Whatever Happiness, Strength, or Uplift You feel from this Diagnosis, try to remember this/that moment, as if to bottle it. When feeling down or made to do so, just recall such Positives. They can empower You. The best Strength comes from within, via justification and knowledge. (And finally access to extras via the LAW, as I said upon your previous Thread.)

    Yes, congratulations, and not sure what else say just now... but I really mean what I just said. Happiness and Contentment is a very precious commodity...

Reply
  • Um... If it is alright, I actually logged on to say this next sort of thing. Miss Boating-Taxonomist  --- Whatever Happiness, Strength, or Uplift You feel from this Diagnosis, try to remember this/that moment, as if to bottle it. When feeling down or made to do so, just recall such Positives. They can empower You. The best Strength comes from within, via justification and knowledge. (And finally access to extras via the LAW, as I said upon your previous Thread.)

    Yes, congratulations, and not sure what else say just now... but I really mean what I just said. Happiness and Contentment is a very precious commodity...

Children
  • I was diagnosed in the August 2017. I was 27 then and I'm now 29. I remember feeling relieved when I found out but it quickly dissolved into panic and sadness. I had an occupational therapist but a few months later she decided she couldn't help and now I am with an autistic charity called MAIN. I have had some sessions from them on what it means and about social skills but I didn't find them of any use. Nearly two years on, I don't feel as positive about my future because I am trying to find a way forward with the charity but I keep getting knocked back.

    I am glad you have clarity and I hope things will continue to be positive.