Adult daughter with Autism

Hi I haven't been on here before do it's all new to me . My daughter is 31 yes old and her autism is getting worse . She as started talking to her self and saying random words out loud all the time . I am so worried about her is it normal for an autistic person to do .

  • Hi Lisa, 

    You may like to have a look at The Behaviour section on NAS website,  here’s a link. 

    https://www.autism.org.uk/living-with-autism/understanding-behaviour.aspx

    SteveMod 

  • I live alone so I talk nonsense to myself all the time.

    Only when I'm with other people, I make a positive effort to behave myself.  Because I understand the consequences of getting a reputation as a self talking nutter.

  • Quick answer:-  Yes!

    I am the father of a 36 yr old severely Autistic son who says the same things over and over again, While he does not watch TV as such.

    He can get "You Tube" and also watches endless dvd's of trains going here there and everywhere. A favourite saying is "The Train now Arriving",.

    But it could be just as well be a phrase from his younger days , such as "The Fat Controller is having Breakfast", or "Get on those eggs"! relating to Daffy Duck and a Crocodile, even "Meep Meep" & "Acme Bird seed " "The Road Runner and Wiley Coyote".

    As for Bart Simpson he must have the whole collection of videos as a reference to call on, relating actions to verbal utterances memorised as heard, or missheard.

    The ultimate is endless cartoons by "Loony Tunes directed by Robert McKimson." being another Phrase copied off the cartoon title as producer.

    Bugs Bunny,Tom & Jerry and his "Dear cousin "Muscles" having terrible trouble with Tom. Need your help. Jerry". He can type the letter as punctuated  as well. 

    Unfortunately he has no other language except repititious demands for endless drinks or food as lists he types out by brand as specified we try to ration fizzy drinks and water down and re-bottle, cans are a limited treat.

    He has no general comprehension of Language, that means any language except Cartoon in his search to be able to communicate.

    He too copied words off the TV but when he was 7 years old. In Those Days it was CEEFAX He taught himself to How to Read them and Write them.

    The Trouble was He could not understand what he said or wrote. except perhaps at its most Basic level sufficient to make a list of Foods, Railway stations , Roads, Weather Seasons, dates, Days, Months Years, If it can be listed it will have been listed endlessly again and again. 

    I am not autistic, but I talk to myself when doing something, I have no Idea why but it seems to assist in solving a problem when working, or trying to understand something complicated. 

    My son will react violently and strike out to stop talking,  if somebody he is with talks to somebody else for longer than a few seconds. This can happen even at home. My Son Needs 2 Carers 24x7 to be on hand, within hearing, should he attack for no apparent reason other than denying him something.

    Trying to get Care for him is very difficult. 

    Whereas my son finds solace in sounds certain speech and music are what he seeks that he know that is being said next as a sound.

    Pehaps your Daughter finds a similar solace in the Visual patterns of Words and the sounds that everybody makes.

    Try diverting her with standard printer paper to draw on.  My son gets through lots.. don't get angry when the walls get covered. We gave up! 

  • I talk to myself and say random stuff all the time (repeating words and quoting things from TV too...it's pretty common; repeating things you've heard is called ecolalia), always have done. Mostly, I manage to do it just when I'm by myself but occasionally feel I embarrass myself when I do it around people (usually because I don’t realise or forget they are there rather than that I cannot control it). Though, I've long accepted I'm a bit 'weird' and try not to be bothered that other people may think I am because I'm talking to myself. There's lots of different reasons people might do so, to express themselves and communicate, or as a sort of stimming (to express emotion, cope with anxiety, as a focus to reduce unwanted sensory input, or even just to get your level of sensory stimulation to that 'just right' point). Sometimes it just sounds and feels nice to be honest. My ability to find myself endlessly entertaining (for some reason the favourite thing I can’t stop saying recently is ‘the hop-sicle, where all the poorly bunnies go’, it makes me giggle) is something I very much enjoy.

    Also I think worth pointing out, it is not necessarily a tic in the tourettes sense. It can be, but tics are kind of involuntary and may be very difficult to control. Certainly for me, saying random stuff might be kind of compulsive (i.e. I really want to say it) or unconscious (I sometimes kind of do it without thinking) but I can not do it.

    Why does it worry you exactly? It's a perfectly harmless thing to do. Although if the amount your daughter does it has increased recently, perhaps it is her way of dealing with stress and there has been a change that is making her feel more stressed.

  • Sorry I didn't mean to say suffer , my daughter just says random words all the time or says everything she sees on TV and can repeat one word ten times

  • "suffer" is quite a strong word to use, but yes I do, it can range from short sentences to certain word's which gives me a buzz, most of the time what I say is unrelated to anything, but if someone asks I quickly think of something to say to relate it to something.

    What helps me is that if someone is in the area when I say something, go along with it and say something to follow on from what I've said, for example, something I say alot at the moment is "I've got to go uptown", so they say, "you can't go uptown, shops are shut", what I say doesn't mean I want to go uptown, but it helps to distract and puts less of a spotlight on it Slight smile

  • Do you suffer with autism and saying random words all the timeb

  • Many thanks for your help I have never had any help and feel like it's my fault and feel helpless as a mum

  • I'm 40s, recently diagnosed AS and yes I talk to myself and yes I say random words.  I also make strange noises. Mostly it's when I'm by myself, and it's like a bit of a stress release. Pretty much every car journey home from work has me shouting a few things at the windscreen!

    here are some links with ino https://www.autismhelp.info/health/tics-tourette-syndrome

    http://www.autism-help.org/comorbid-tourette-syndrome-autism.htm

    http://www.myaspergerschild.com/2009/01/aspergers-syndrome-and-tics.html