Been given a non-diagnosis but what do I do now?

Hi, 

I'm 22 and female and have just been told that, although I have lots of autistic traits, I don't meet all the criteria. I feel upset as I feel like I'm back to square one.

The panel said that I had empathy and could talk well and that was the reason, but did admit that it wasn't a straightforward case. I felt like my answers were guided quite a lot, and I provided a booklet of info beforehand which they didn't really ask me about. They didn't actually speak to me that long (maybe 30-45 mins), but they were talking to my mum for an hour and a half. 

I have a lot of anxiety and sensory issues, which I felt they dismissed. One of the panel suggested to try "tomato ketchup therapy" which he explained was to "give yourself a shake". I didn't think that was particularly helpful, and I wish I had said something at the time. 

I understand that they are the experts, so if it's not autism then that's fair enough, but I kind of hoped that they might be able to suggest what to do next. They basically said that I didn't even hit enough criteria for anxiety (which my GP would disagree with) and if I wanted to I should just go to a private therapist - which I couldn't afford. Re the sensory issues, they didn't know what would be the cause of that.

For context, this is a list of the main issues I have experienced:

- constant levels of anxiety (and exhaustion)

- noise/touch sensitivity

- unable to distract myself / switch off brain

- some obsessive traits (checking things repeatedly) 

- overly sensitive (emotionally) 

- difficulty making friends

- lack of desire / anxiety over socialising

- extreme perfectionism

- childhood self harming behaviours

- panic attacks

- talking to quietly or too loudly and not being aware of it

- talking for too long about subject of interest, not picking up when people want to move on to something else 

- not picking up when to speak in normal conversation (i.e. Not interview setting where you answer questions) 

- inflexible / anxiety around change

- Get completely absorbed in tasks

Can anyone suggest what I should try now? Or give any advice? I know I've been told I'm not autistic, so probably shouldn't be posting here, but I thought folks might be able to advise since I share some of the issues as AS folks may have. I hope that's ok. 

Thanks for your help 

Parents
  • Was this NHS appointment if so complain. Pals can point you in the right direction, speak to your gp again if they are in agreement they can refer you again. 

    To suggest giving yourself a shake is disgraceful! But unfortunately not surprising, I have been trying to get an assessment for my daughter for 4 years now and we have been rejected on wording of referral letters! 

    Speak to gp again point out your difficulties take as much evidence as you can. This site may also have more specific information on how to challenge this 

  • Yes I think it was NHS - Scottish Autism does it and I was referred by GP. Thanks so much. I just felt a bit hurt. 

    What is Pals? 

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