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Advice needed on draft diagnostic report

Sunflower
over 5 years ago

Hi everyone,

I finally received my draft diagnostic report last night. I had intended to share part of it with my employer, but having read it I do not feel comfortable about this. There is relatively little in the report relating to employment and it is so deficit focused that I am concerned about the impact it would have. 

I've been given an opportunity to correct inaccuracies before the report is finalised and I'm considering whether to ask for more significant amendments: 

  • Greater specificity about the assessment process and diagnosis (DSM or ICD? diagnostic code?)
  • What ASD is, how women may present differently, and the impact of very late diagnosis 
  • Information on autism at work - including particular challenges discussed in assessment  
  • Austistic strengths at work - in general and with reference to my skills and career history 
  • Employment recommendations (only one in the report but I was emailed more previously)  

I would be happy to draft the additional material myself and ask for it to be added to the report. Perhaps this would be seen as inappropriate though? 

Just wondering how you felt when you received your diagnostic report - were autistic strengths highlighted as well as deficits? If you were working did you share all or part of the report with your employer? 

I've been waiting a very long time to receive the diagnostic report so I was a bit surprised by its brevity and lack of specificity. I have not seen any other reports so maybe mine is typical. It is a rough draft (typos, missing words) which Is difficult for me too. I would be upset if the final version included mistakes but if I correct the grammar and spelling I might cause offence. 

I would appreciate any advice anyone can offer. I expected to have some negative feelings about my report given the assessment process is based on the medical model. However, I thought it would contain more information relating to employment as this was the main problem when I referred myself - we also spent much of my assessment discussing it. 

Thank you! 

Parents
  • over 5 years ago

    If I had received one, however, I would treat it as being for my eyes only and probably ask for a summary for the OT department at work IF I felt that certain things being on the record might be helpful.  Then possibly use my next appraisal if there were any specific strengths, challenges or accommodations I felt I needed to discuss.

    My approach is very guarded though and I'm not very trustful of most employers.

  • over 5 years ago in reply to Jenny Butterfly

    You are right to be guarded and not to be trustful Jenny. I am going to try and adopt the same policy from now on. 

  • over 5 years ago in reply to Sunflower

    Yes, I would need to feel very safe about disclosing personal information to employers and, in the absence of that, I would pare it right down to very brief, factual information that is targeted towards the results you'd like to see.  E.g. if you'd like a coach then maybe a brief outline about how this would help you and, in turn, the organisation too.  

    I guess the bottom line is that I don't feel very safe with employers though.  To my mind the employer - employee relationship generally suffers from a huge power imbalance and I wouldn't trust them not to misuse their power.  This also means that i'd be very guarded against giving them (or their henchmen in HR) anything which could later be used as ammunition against me.  

Reply
  • over 5 years ago in reply to Sunflower

    Yes, I would need to feel very safe about disclosing personal information to employers and, in the absence of that, I would pare it right down to very brief, factual information that is targeted towards the results you'd like to see.  E.g. if you'd like a coach then maybe a brief outline about how this would help you and, in turn, the organisation too.  

    I guess the bottom line is that I don't feel very safe with employers though.  To my mind the employer - employee relationship generally suffers from a huge power imbalance and I wouldn't trust them not to misuse their power.  This also means that i'd be very guarded against giving them (or their henchmen in HR) anything which could later be used as ammunition against me.  

Children
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