post diagnosis acceptance?

I’ve been having a bit of a bad couple of weeks after the initial relief at getting an ASD diagnosis. I’ve been angry, frustrated and doing a whole lot of the why me thing I think as it sunk in that this is real, it isn’t going away, and the things that I really struggle with are always going to be a struggle. Especially  I have had very little idea what to do about explaining to my linemanager what support I really do need. I told him about the diagnosis - he seemed rather weirded out by the whole thing. I can understand that but it really hasn’t helped!

I’ve been doing the whole ‘I should be able to do this’, ‘at the end of the day I have to do the job don’t I’ everybody struggles, why should I get special help’,’what will they think of me...’ blah blah blah bit. Guess at the end of the day I don’t like admitting that I can’t actually manage stuff. I guess that’s what comes of trying to pretend you can for so many years until you actually have a breakdown! 

So I finally seem to be coming out of it a bit. I think I’ve realised that I do need to accept it. It is what it is. And I think I’m starting to, though I guess it may be a work in progress for a while yet given it’s one month diagnosed versus 43 years not! What is the point of struggling if small adjustments might make life a lot easier. It’s probably a win win situation really if I don’t end up taking time off due to utter exhaustion and burnout again...

i really, really do not like admitting I need help though.  Nyuuurgh!

im told it’s normal to go through this phase before properly accepting an ASD diagnosis. I hope that’s right! The point of getting a diagnosis was to try to make things better but I guess that can’t happen without quite a lot or readjustment and effort on my part. I’ll get there.... I hope!

Parents
  • So sorry to hear the last couple of weeks have been tough. I've read quite a few accounts of burnout happening just before or after ASD diagnosis. 

    Here's a blog with lots of links, some of which might be helpful:

    https://medium.com/@bixmediocre/today-i-learned-about-autistic-burnout-c0a154f358a2

    Try and get plenty of down time so you can build up your energy levels again.

    Take care () 

  • Thanks sunflower, that’s a really useful blog, you are a brilliant mine of information :o)

    Yes it was a pretty much complete breakdown earlier this year (which I now realise was probably basically autistic burnout) that finally led to me being taken seriously and getting a diagnosis. I’m still having to be very very careful to get enough sleep and downtime and I suspect that will always be the case. It’s frustrating - Not that I’ve ever actually minded being on my own to be fair! Me a book and a cup of tea is always quite a happy combination. Maybe chocolate too...

    I think I just hate how limited energy is limiting everything else, from only being able to work part time, to not daring to take on anything extra. shouldn't complain I guess, it could be far worse. I do still have a job, and one where my boss is actually very supportive, if a bit non-plussed on how to best support me. The trouble is, so am I.

    Ah well, as my gran used to say, onwards and upwards!

Reply
  • Thanks sunflower, that’s a really useful blog, you are a brilliant mine of information :o)

    Yes it was a pretty much complete breakdown earlier this year (which I now realise was probably basically autistic burnout) that finally led to me being taken seriously and getting a diagnosis. I’m still having to be very very careful to get enough sleep and downtime and I suspect that will always be the case. It’s frustrating - Not that I’ve ever actually minded being on my own to be fair! Me a book and a cup of tea is always quite a happy combination. Maybe chocolate too...

    I think I just hate how limited energy is limiting everything else, from only being able to work part time, to not daring to take on anything extra. shouldn't complain I guess, it could be far worse. I do still have a job, and one where my boss is actually very supportive, if a bit non-plussed on how to best support me. The trouble is, so am I.

    Ah well, as my gran used to say, onwards and upwards!

Children