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Newly diagnosed and annoyed

Traicee

I'm 34 and was diagnosed as autistic about 3 months ago.  I have not received any help or support at all other than being enrolled in a support group that was less than useless. It was essentially a group of people sitting around saying the stuff they struggle with. I already know what I struggle with , I want to know what I can do about it.

Even this website is useless unless you need a carer or something. If you manage to work full time, despite the fact it makes you horribly depressed and anxious all the time, you're expected to just deal with it. There is no help or support in place at all.

I'm fed up with struggling, I want to know what to. I'm beginning to think that getting a diagnosis was a massive waste of time, it hasn't changed anything. I mean, at least now I know why I've been having trouble all my life, but I'm still no closer to actually getting any help.

I'm genuinely stuck. I've been told that masking is part of the reason that I struggle so much with my mental health. But what on earth am I supposed to do? Drop the mask and be unable to function in "normal society "? 

Any help/advice appreciated 

Parents

  • Hi Traicee,

    i can relate to this so much. I was recently diagnosed myself and haven’t really received a lot of support either. I’m not sure there is much. Like you I’m in work but struggling. I get very anxious and exhausted/burnout very easily, to the point where I can’t function. 

    I have found though that just knowing it’s ASD has meant I can accept it a bit more and stop beating myself up about it, in that way my diagnosis has been a huge relief. It doesn’t sound like that’s been the case for you though?

    Just dropping the mask isn’t that easy is it, certainly not at work. I’ve been trying to learn to only put it on when I need to though, rather than all the time - definately a work in progress though! That does seem to be helping a bit. What I mean is giving myself full permission to be real ASD me outside of work/public and to make sure I have plenty of down time to do just that. The main thing so far is I’ve realised I’ve been suppressing the urge to stim, even in private, because I wasn’t ‘supposed’ to do it. I now just do it in private. That seems to be a big help actually and can really help calm me down

    So - cant help much practically as I’m still trying to work this out. Can offer solidarity though. If you come up with any solutions would love to share?

    :o)

Reply

  • Hi Traicee,

    i can relate to this so much. I was recently diagnosed myself and haven’t really received a lot of support either. I’m not sure there is much. Like you I’m in work but struggling. I get very anxious and exhausted/burnout very easily, to the point where I can’t function. 

    I have found though that just knowing it’s ASD has meant I can accept it a bit more and stop beating myself up about it, in that way my diagnosis has been a huge relief. It doesn’t sound like that’s been the case for you though?

    Just dropping the mask isn’t that easy is it, certainly not at work. I’ve been trying to learn to only put it on when I need to though, rather than all the time - definately a work in progress though! That does seem to be helping a bit. What I mean is giving myself full permission to be real ASD me outside of work/public and to make sure I have plenty of down time to do just that. The main thing so far is I’ve realised I’ve been suppressing the urge to stim, even in private, because I wasn’t ‘supposed’ to do it. I now just do it in private. That seems to be a big help actually and can really help calm me down

    So - cant help much practically as I’m still trying to work this out. Can offer solidarity though. If you come up with any solutions would love to share?

    :o)

Children
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