Entitlements/concessions..anything??

Need some clarity about conflicting information, hope you can help.

Some background first;  Diagnosed this year (confirmed what I knew/made sense of my entire life); so called 'high functioning'.. Have for 30 years somehow managed to hold down a job (health professional), a good marriage and two- now grown up- children. Diagnosis has at least given me 'permission' to be myself, so I don't have to wing it beyond my capabilities quite so much. Life has been, and is, harder/more exhausting and at times more distressing than people realise. Some adjustments agreed at work (protected time, quiet work space, acceptance that I might need recovery time and that I am not 'lazy'..but not allowed to reduce my workload. Review in 3-4 months with union and HR etc, go to process of finding me another role in the organisation if the workload has too much impact on my mental health.

I'm 'lucky' in the sense of a relatively secure and comfortable life (if I can keep going that is; often feel like I want to run away from it all), but confused;

1.  my manager asked if I had considered applying for benefits. I don't desperately need extra money, but certain aspects of PIP or suchlike might make life easier. I am well aware, through my work, of the near impossibility of a successful benefits claim and the ridiculous hoops people have to jump though. I could convincingly state a case for extreme psychological stress/distress in some situations (overstimulation/unfamiliarity/ being so distracted that I have nearly been run over numerous times in my life, in busy places), and my life would probably be a disaster if my wife didn't keep on top of finances etc (it all confuses me). Is it even worth bothering to apply when you are one of us who might appear to be 'managing alright' ?

2. Any other entitlements or concessions for anything at all? Bus pas or anything like that? A couple of professional colleagues who are more specialised in ASD, have mentioned that the diagnosis, and the NAS card (I had mine laminated), automatically entitles you to some things..travel was mentioned? I've also heard from others with the diagnosis, that diagnosis anD the NAS card 'isn't good enough' when seeking help or concessions, but the ASD assessor who diagnosed me, I'm sure she said it was a nationally recognised tool

For life in general, what if any leeway or consideration is there? I didn't expect my life to change overnight, but I'm finding that nothing really seems much different. I think I need to:

A: Know exactly what is available for 'higher functioning' (misleading term) ASD when society does not consider you to be 'severely disabled' 

B: Assert my needs more.   

Many thanks for any advice     

Parents
  • I'm in a somewhat similar position. My career has been very disjointed though, and I've ended up doing part-time and casual roles - partly due to my hasband's ill health and partly because I found full-time professional roles got increasingly stressful. I haven't got my diagnosis yet. As a woman I'm slightly concerned DSM-5 may not pick up all of the nuances - I'm hoping clinical experience and expertise will make up for this though.

    I've yet to mention my autism assessment at work and I'm not expecting much in the way of accommodations if I get a diagnosis. Managers and colleagues who know the 'pretending to cope' version of me may well struggle to accept my difficulties are real. I've had a tough time getting any concesssions for Dupuytren's Disease and hearing loss. The three conditions together have quite a significant impact on the work I can do. 

    To end on a more positive note I have found mentioning I am undergoing assessment for autism has helped in some situations. I've got an ankle injury and to get a GP appointment generally involves being on stand by at 8am and then making multiple calls using speed dial for 10-15 minutes using both mobile and landline. I explained to the receptionist how stressful this is and she booked me straight in with the GP instead. 

    I had to phone another service this morning. We got into one of those conversations that just goes round and round in circles about when I was and wasn't available to get a call back from a duty officer. I could sense her tone of voice becoming irritated. Then she said she'd find someone to answer my query immediately. I'm pretty sure this was because I mentioned my autism assessment. 

    It's definitely worth looking into things like concessions for bus travel, theatre tickets, sports and leisure activities. I am registered as a carer and while I don't get financial benefits I have had vouchers for free relaxation therapies. I was given a list of local businesses who offer carers concessions - there may well be something similar for people diagnosed as autistic. I'm sure you'll get some good advice from established members of this community. 

    I agree with you about understanding entitlements and acting assertively. 

Reply
  • I'm in a somewhat similar position. My career has been very disjointed though, and I've ended up doing part-time and casual roles - partly due to my hasband's ill health and partly because I found full-time professional roles got increasingly stressful. I haven't got my diagnosis yet. As a woman I'm slightly concerned DSM-5 may not pick up all of the nuances - I'm hoping clinical experience and expertise will make up for this though.

    I've yet to mention my autism assessment at work and I'm not expecting much in the way of accommodations if I get a diagnosis. Managers and colleagues who know the 'pretending to cope' version of me may well struggle to accept my difficulties are real. I've had a tough time getting any concesssions for Dupuytren's Disease and hearing loss. The three conditions together have quite a significant impact on the work I can do. 

    To end on a more positive note I have found mentioning I am undergoing assessment for autism has helped in some situations. I've got an ankle injury and to get a GP appointment generally involves being on stand by at 8am and then making multiple calls using speed dial for 10-15 minutes using both mobile and landline. I explained to the receptionist how stressful this is and she booked me straight in with the GP instead. 

    I had to phone another service this morning. We got into one of those conversations that just goes round and round in circles about when I was and wasn't available to get a call back from a duty officer. I could sense her tone of voice becoming irritated. Then she said she'd find someone to answer my query immediately. I'm pretty sure this was because I mentioned my autism assessment. 

    It's definitely worth looking into things like concessions for bus travel, theatre tickets, sports and leisure activities. I am registered as a carer and while I don't get financial benefits I have had vouchers for free relaxation therapies. I was given a list of local businesses who offer carers concessions - there may well be something similar for people diagnosed as autistic. I'm sure you'll get some good advice from established members of this community. 

    I agree with you about understanding entitlements and acting assertively. 

Children
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