Soon to see a specialist for diagnosis as an adult

Hey everyone. I’ve been lurking here for a while as I go through my own process of learning about Asperger’s/ASD and getting a diagnosis.  I’m now close to seeing a specialist for the first time so I’m looking for some advice to help me prepare. 

I’m a PhD student based in Glasgow, Scotland.  For a long time I brushed off the possibility of having Asperger’s Syndrome/ASD, even though I’ve known for pretty much my whole life that there was something “different” about me (I’m in my mid-20s now), which given my experiences goes beyond simple eccentricity or quirkiness.  After reading about people’s experiences and worldviews, I felt galvanised to seek out advice and a diagnosis. 

After a chat with a couple of folk at the uni’s disability service (one of whom is autistic themselves), they recommended that I compile some information for a GP based on resources from the National Autistic Service’s website. 

Following this, I compiled the document, cross-referenced with a few people who know me well (boyfriend, couple of friends), and mustered the courage to take it to my GP.  She was very understanding and gave me a referral immediately to the local Community Mental Health Team (basically to see a psychiatrist), and I will have an appointment within 1-2 months. She said that they have a “high threshold for assessment”, which is the part which has me most worried/nervous.  I don’t believe I am severely autistic (if I am indeed judged to be at all by the psychiatrist), and I’m an adult, so my fear is that my case will be looked at with scepticism since I am fairly intelligent and can usually cope with day-to-day life on the basis of this.  The worst case scenario for me is to walk away none the wiser about myself after all the work I’ve put into this. 

If anyone has any insights, comments, or anecdotes, I’d be grateful if you could share them. 

Parents
  • Hi there,

    I can see why you are concerned about walking away none the wiser but I doubt this will happen. Even if you don't meet the "high threshold for assessment" you will be really well informed about ASD and women through all the work you are doing. 

    You might want to complete the NAS online module on autism in women and girls if you haven't already done so (it's free until March 2019). Worth keeping a notepad handy so you can record any examples that come to mind.

    Some adults comment on the lack of support post diagnosis. People you share your diagnosis with may not react as you expect. It's probably advisable to have realistic expectations. Windscale makes a good point: clinically significant impacts are important.

    Best wishes with your meeting. I hope it is a really positive experience. 

Reply
  • Hi there,

    I can see why you are concerned about walking away none the wiser but I doubt this will happen. Even if you don't meet the "high threshold for assessment" you will be really well informed about ASD and women through all the work you are doing. 

    You might want to complete the NAS online module on autism in women and girls if you haven't already done so (it's free until March 2019). Worth keeping a notepad handy so you can record any examples that come to mind.

    Some adults comment on the lack of support post diagnosis. People you share your diagnosis with may not react as you expect. It's probably advisable to have realistic expectations. Windscale makes a good point: clinically significant impacts are important.

    Best wishes with your meeting. I hope it is a really positive experience. 

Children