Air travel

Hi all

(My first post, so I'm a bit nervous!)

I am 60 years old and only diagnosed with Asperger's a few months ago. I'm still coming to terms with the diagnosis, but I thought it might be interesting to share my experience with preparations for air travel over the past 24 hours. 

I fly quite frequently as part of my job. Next week I am due to fly to Germany and back with Eurowings. 

Like many others here, I imagine, I find airports extremely difficult. As well as Asperger's, I have Ménière's and sometimes the stress aspects of the autism can trigger a vertigo attack. Plus, thanks to the Ménière's, I have severe hearing loss and tinnitus.

Yesterday I found out about the Sunflower lanyard scheme to support hidden disabilities, which seems great. I contacted someone involved with that scheme and will be getting support at Stansted https://www.stanstedairport.com/help/special-assistance/hidden-disabilities/ It will be very interesting to see how well that works!

They also advised me to contact the airline (Eurowings, on this occasion), and it is this part that I wanted to share...

I filled in the Eurowings online support form and got a message saying it would take 6-8 weeks for them to reply! So I phoned their helpline instead to ask for assistance. Once I said what I wanted, the gentleman on the other end spent some time consulting with his manager before talking further to me.

He first asked me to produce a certificate to prove I have autism. I said I do have a psychologist's case report, but I was not very willing to share it.

He then offered to provide a wheelchair, which I told him I do not need.

He then asked me to explain in detail what are my problems. I did the best I could - it's not easy! He seemed quite baffled.

He then said he could not provide someone to accompany me on the flight. I explained (I hope politely) that I do not want a person to accompany me - what I want is a fast transit, understanding staff, and access to a quiet place where I can be undisturbed.

He finally said he could not help me at all, and that was the end of the conversation.

To be fair, Eurowings is an airline, not an airport, so it's possible that they have less interest until you actually get on the plane. But even so, I was quite shocked by the lack of understanding of hidden conditions. Apparently UK airlines perform better on this. Anyway, I have sent an email (again, polite) explaining my experience and suggesting ways they might improve. I don't expect much response, but every little helps!

Parents
  • Hi Hugers, So sorry to hear about your negative experience! I love travelling (with EasyJet usually) and theyvth been great... I always book Special Assistance and tick the relevant boxes, so there are no awkward face to face questions or interrogation on arrival at the airport...

    Commenting on your recent diagnosis too, I was diagnosed with autism in January of this year and, even though peoope have been telling me that I'm autistic for decades, it came as a bit of a shock and I felt low. I needed time to get my head around the diagnosis and now I'm so pleased that I'm finally getting the support I need....its i opened up doors for me and helped me along my journey...

    Be kind to yourself, be patient with yourself and fingers crossed your diagnosis results in a better understanding of your condition and a better life going forward.

    A :-)

  • Hello, this is a really interesting thread. I’m recently diagnosed too and have always found flying a nightmare. Not so much the plane, it’s the airports. I end up crying in the loos every single time! 

    I hadnt even considered that I’d be able to get assistance once I had a diagnosis. What you’ve described plastic sounds perfect. I will make sure that I ask next time. Do you ask the airline or the airport?

    Hugers - Good luck! I hope you manage ok on your journey. I’d be interested to know how it all works at stanstead. I’d not heard of sunflower lanyards, that sounds like a great idea.

Reply
  • Hello, this is a really interesting thread. I’m recently diagnosed too and have always found flying a nightmare. Not so much the plane, it’s the airports. I end up crying in the loos every single time! 

    I hadnt even considered that I’d be able to get assistance once I had a diagnosis. What you’ve described plastic sounds perfect. I will make sure that I ask next time. Do you ask the airline or the airport?

    Hugers - Good luck! I hope you manage ok on your journey. I’d be interested to know how it all works at stanstead. I’d not heard of sunflower lanyards, that sounds like a great idea.

Children
  • Thanks Zomted! This is all new to me too, as you gather. We live and learn.

  • I'll give you our routine - I have a couple of health problems too - typical flight to Florida from UK

    Book holiday - wait until all the confirmations come through.

    Contact airline - explain my situation and my needs - get everythjing agreed

    Contact airport and give them all the details / dates / requirements.

    Book on-site parking - a little more expensive but worth it to reduce stress. (£70)

    Book airport vip lounge. (£30 ea)

    Book on-site hotel so we can travel down the night before - this removes any time pressure & traffic stress on the day of flight. (£30 /room)

    On the day, get packed (we only take hand-luggage - no need for heavy clothes in Florida). Take a gentle drive to the airport in the evening - nice & quiet, no traffic. Park the car & take the courtesy bus to the terminal.

    At the terminal - twilight check-in - get your seat properly allocated & solve any minor issues with no queues. Go from the terminal to the airport hotel - have a gentle evening in the hotel - food, drinks etc.

    Next moring, leave hotel (got lots of time), get to terminal & report to special assistance - they will escort you through security then go to the lounge - have breakfast, watch planes out the window, read the paper - very civilised.

    When it's time, special assistance come and get us from the lounge and take us to the gate in the little electric cars.

    We get pre-boarded onto the plane so I go and iidentify myself to the crew - they will have a message from head office about me so they can match the person to the message.

    I explain my problems and the best way to deal with it all - as previously agreed with the airline.

    If we're lucky, they sit us in the empty area of the plane - whole section to ourselves.

    I get picked up by wheelchair at the other end and that takes us through priority passport control, we have no luggage to pick up so they take us straight to car rental and we're off & out of the airport.

    From plane touching the tarmac in Florida, we are in the hotel in under 1 hour. Faster than most people who will be still waiting for their bags.