Published on 12, July, 2020
After months of waiting, I have finally been invited to a discussion of the outcome of my assessment in a couple of weeks time. I have heard mixed reports of what to expect. Some people seem to just get a very brief diagnosis, others a multi page document and other resources/signposting. So I don't know how to prepare. I feel desperate, though, and need to get as much out of this appointment as possible. Obviously I'm hoping I've got a team that does a full report and highlights local and national resources for me, as well as considering what I think is a really important issue (and indeed the one which drove me towards seeking a formal assessment) - autism as a family issue.
There have been so many issues within my family over the years and these have become quite desperate in the cases of both of my sons. Neither will consider going for an assessment themselves so it's a vexed issue, but in order to seek appropriate help, I feel I need to know what's going on in my family. My own diagnosis will, I think, give me some indication even though I appreciate this would be more of a balance of likelihoods/working hypothesis.
If I don't get diagnosed I'll feel I've drawn a blank and won't know what to do. However, with the end of the diagnostic process, I will be discharged from the Autism Team and also the local Affective Disorders Team (lovely title!) which oversees this service. So i'll have nothing.
I'm quite afraid of what might happen next. What questions and expectations should I take to this last appointment?
And... Drumroll... I finally got a positive diagnosis. Not yet sure how to feel about this at the age of 55, but I think it is the best possible outcome after years of feeling at odds with the world. :)
So pleased for you - I'm sure this clarity will prove to be really helpful for you and for your sons. What a pity that the process turned out to be so long and arduous. It's wonderful that you persevered with it and finally got your diagnosis.
Well done you,
now there will be a lot to come to terms with, it effects different people in different ways,
just remember there are kind people here that will have travelled that path or are doing so right now.
I am not diagnosed and may never get there, but for all those trying I wish you well.
In my own personal view it is worth having that validation, for many reasons!
I am 56 or according to some they believe autism can mean half that age, I disagree as the child in me is very much younger than 28,
It isn’t a rolling thing, it remains static in a lot of ways, often hidden by finding coping mechanisms, but still a daily struggle trying to be an adult without the inner abilities only what can be gained by observing adults, not great as many adults just aren’t very good at coping, they seem to make it up as they go. Massive credit, no sense of money, no loyalty, just random ways,
Way to many variables to create a solid basis for being an adult when the gained info contradicts so often.
Anyway enough of my ramblings, just wanted to say again, well done you, take care and don’t be alone on your journey.
excellent news!