Women (and men) diagnosed with ASD in later life - advice please!

Hi. I am new to the forum. I am 33 years old and think that I might have Aspergers. I have been researching for almost two years through books, youtube, online reports, blogs, vlogs, forums, radio, TV. I feel it fits. It describes who I am. I am not here to go into why I think I have it but to see if there are any women who have had similar experiences to me but have been diagnosed with ASD.

I have always felt different or out of step as a child, growing up, as an adult. I have looked into various things over the years - bipolar, schizophrenia, introversion, only-child(ness), defective parenting on my mum & dad's part, autism, aspergers. I rejected all of these. A friend said in passing (not directing anything at me) that "aspergers in women is presented differently than in men. Women mask their symptoms". When I had read about autism and aspergers on the internet,  this was all male-orientated and I couldn't relate to it. So I started to read about aspergers in women.

I approached my partner about it after a few months of reading. He said there's a possibility but is of the mind-set that "well you are who you are so it doesn't matter". It matters to me. I feel I have been searching all my life to find out who I am. This is like a piece of a puzzle which I never even knew existed. Now I've found it, it's like a whole different picture.

I have approached a few good friends about it (after a few drinks; it was the only time I felt brave enough to) who have dismissed it straightaway. I was quite offended by this. When I have spoken to my partner and these friends about why I think I have it, I have been met with "oh well I do that too".  I have given up talking to friends about it. I said to my partner "Why would I go researching about it for myself if I didn't think there was anything wrong with me? You only start looking into something if you think it applies to you otherwise what's the point?" (By the way I don't think there's anything "wrong" with me now but all through my life I have felt that...). From reading the material that I have,  I wonder if any neurotypicals have read it and can identify with it too? I would be interested to know.

The thing is, if friends don't believe my and my partner to all intents, is 50/50, then a doctor isn't going to believe me. I have read many stories of women who have been laughed out of their GP surgery. I find that on reflection, I sometimes only talk about things if they are explicitly asked of me so unless I am asked something outright, I might not even think to talk about it.  If that makes sense.  I feel that there are no special circumstances to me. I read that a lot of people with ASD struggle with jobs/college/friends/mental health.   I have a full-time job teaching English to foreign people (a job, I would argue, fits very well. I am in charge of  and control my own workload, I can put on a "show" for my students, if there are any communication difficulties this could be put down to the language barrier, I can get along with the people for the length of the classes so get enough "people time" without having to invest any further as you would in for example with colleagues in an office). I have a degree from uni and some friends (who are gay men or not "typical" females). I value my friends (mostly) very dearly, but friendship is still difficult. I won't go into that here. I don't have any special skills that I can identify myself and have always been able to hold down a job (I would argue at a cost to my mental health which I have only been to the doctors about twice. Again I think this is because sometimes I cannot identify when I have problems or don't bother asking for help, thinking that I can sort it out myself).

When things are going bad, I am convinced I have ASD. I keep coming back to it. More and more. That must tell me something surely. This is something Sarah Hendrickx mentions in one of her youtube videos.  The mask falls off and ASD is uncovered during times of stress.  At the moment I feel that my mental health is well, things are going OK in life and am thinking "well perhaps I don't have it". I know from experience that this won't last long. I just feel it's given me a window into my life which explains a heck of a lot.

I feel like I am being ridiculous. While I can't relate to the NT world, I feel that people with ASD would not be able to relate to my experiences either so I am in no-man's land. My plan of action is to first, put this out on a forum and second, speak to my parents about what I was like growing up. I am scared to do this. I feel my mum would say "don't be so daft". 

Is thete anyone with similar experiences to me who have been diagnosed with ASD? i.e. thinking you have it then you don't then got diagnosed? Are there any women (or men!) diagnosed who  seem to live a regularly "NT" lifestyle (ie job, qualifications, friends), and how has this impacted on your mental health? (Before or after diagnosis).

I appreciate all comments however  big or small but please believe me when I say that this is a big step for me in posting this.

Thanks for your time

Parents
  • Hello, I just wanted to say that your post resonates with me and well done for having the courage to post on here.  I am not diagnosed, so I apologise for responding even though you wanted to hear from other women who are, I am too afraid to go through the process and I am 50.  I have a daughter (12) who has just recently been diagnosed with ASD, which came as a shock to me as I knew there was something but thought it might be ADHD.  However some of the way she presents is very similar to how I was as a child.  I have many many reasons to believe I am on the spectrum. What resonates with me from your post is that I too keep coming back to the belief that I am on the autistic spectrum on bad days and I also struggle in some way to get through each and every day.  I have a twin sister who I confided in about my feelings on the matter and she would not entertain the idea.  The trouble is that people can't see what goes on inside us.  When I was about 30 I promised myself that one day I would get to the bottom of why I am the way I am and I believe I have found the answer.  Although  I am undiagnosed and can respond a little to your question regarding the impact on my mental health, jobs and relationships etc.  When I was in my late teens I developed an eating disorder, which I got over fortunately, though I still think my relationship with food could be better.  I have had many jobs, some I held down for five plus years but struggled through them, feeling I didn't fit in, didn't understand a lot of what was asked of me (having to keep asking etc etc) and in every FT job I've had invariably I've had to take days off due to stress and not being able to face it!  I now work from home, which is much easier.  I've had a lot of relationships, some I felt I was treated very badly in and I didn't settle down and get married until I was 35.  My husband knows I think I'm on the spectrum and he agrees with me.  As I'm getting older, sensory issues are getting worse, especially sounds and touch, which makes me feel very grumpy and I know he must feel it, which makes me also feel bad.  I hope you don't mind me responding and I wish you all the best x

  • I think it's really interesting how you say your child is very similiar to you when you were her age. When you say "you struggle in some way or another to get through each and every day" I think I can see this in myself although I'm not sure if how I am some days is down to the stress of work or how I interpret the world and deal with the stress. (eg back in work teaching this week after 4 weeks off. I've felt awful this week. First off, in a different classroom to usual so things are in different places. The room is in a different place in the building. The computer and projector are not working. I've got a different member of staff supporting. My students are new. I've got a change in my routine from the past 4 weeks. Not been sleeping. Not been able to switch off. People coming asking me questions at break time so unable to have 5 minutes to myself. I know this is a regular thing in teaching but I have found this week really difficult and am wondering if ASC is coming into play or if it's just general work stresses).

    Yes! People can't see what goes on inside. That's a very good way of putting it. Do you think you will seek a diagnosis?  How do you find having children while being/self identifying as on the spectrum? I don't have children and the thought of having one, one day has been causing my great anxiety lately for many reasons. One of which is that I don't know how I will cope with the sensory aspect (eg crying, noise, being pregnant, etc) and also the fact that I cherish and enjoy and need time spent on my own. Having a child means someone depends on you 24/7 and you cannot just switch off!

Reply
  • I think it's really interesting how you say your child is very similiar to you when you were her age. When you say "you struggle in some way or another to get through each and every day" I think I can see this in myself although I'm not sure if how I am some days is down to the stress of work or how I interpret the world and deal with the stress. (eg back in work teaching this week after 4 weeks off. I've felt awful this week. First off, in a different classroom to usual so things are in different places. The room is in a different place in the building. The computer and projector are not working. I've got a different member of staff supporting. My students are new. I've got a change in my routine from the past 4 weeks. Not been sleeping. Not been able to switch off. People coming asking me questions at break time so unable to have 5 minutes to myself. I know this is a regular thing in teaching but I have found this week really difficult and am wondering if ASC is coming into play or if it's just general work stresses).

    Yes! People can't see what goes on inside. That's a very good way of putting it. Do you think you will seek a diagnosis?  How do you find having children while being/self identifying as on the spectrum? I don't have children and the thought of having one, one day has been causing my great anxiety lately for many reasons. One of which is that I don't know how I will cope with the sensory aspect (eg crying, noise, being pregnant, etc) and also the fact that I cherish and enjoy and need time spent on my own. Having a child means someone depends on you 24/7 and you cannot just switch off!

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