Housing. Family, Doctors, services refuse to help. What to do?

Please skip to the end for a brief statement of the problem and the associated question if I  write too much useless nonsense.

Since a young age I was abused and neglected by a "family" which did not want a child and were even more unappreciative of my strangeness as a child with autism, I was not raised at all, kept in a room and denied permission to socialize outside of school hours, at home I was frequently physically harmed, denied parental interaction other than violence or aggression, and was forced to live in the garden as an animal for several years in mid teens, denied entry to the house.  I was never taken by my parents to a doctor for childhood diagnosis of autism because they did not care about that.

In my late teens or early twenties my extreme anxiety and inability to function socially was misdiagnosed as a "schizotypal personality disorder" after I was forced into involvement with social workers and forensic psychologists etc. I have always suffered from extreme sensory discomfort, extreme intolerance to noise and texture, but these things were not of any interest to these doctors, the antisocial personality which I had developed as a result of being abused and segregated from human contact was the only thing that they wished to address, to determine whether I was a danger to myself or others.

When they decided that I was not a danger they just left me to rot in a run-down council flat on disability benefits and offered no treatment. While living there I was subjected to heavy abuse from the community, ranging from insults and deafening 24 hour music assaults from neighbours, to arson attacks on the building and death threats plastered on walls and doors.

I received assistance to move again but have still just landed in another abusive environment, and the doctors completely broke off all contact with me because they believe there is nothing they can do to help me. Before breaking off contact they said they would get me in touch with an autism service but they just didn't bother. A while later I asked for further help from a different doctor, asking if he could get me some kind of autism support and he agreed that I appeared to need it and he would get in touch with someone, but after chasing him down a few months later he told me that although I do have autism he doesn't see how I could benefit from any of the services that could be made available.

I have been completely housebound for 8 years and am only able to survive by an internet connection and grocery delivery services. One time when the internet went down for over a month I went several weeks without food and very nearly starved to death. I had been trying in vain to somehow improve my situation by doing University courses from home but the noise has made it impossible to do in 5 years what I would otherwise easily have completed in under one year.

I would be perfectly capable of achieving academic success, for whatever it is worth, and eventually provide for myself, if I had the ability to find a place to live that is away from people with no noise, but of course I don't have the money to do that, or the ability to deal with the necessary people involved in moving house. I don't know how to do any of that stuff because my brain just ceases functioning properly when forced to be around people.

I have sent emails asking for advice from a number of websites which claim to be autism support services but they have all just ignored my information requests.

I have asked "family" how to move house but unsurprisingly they are uninterested in trying to explain anything beyond "get a council house application form".

I have acquired the form and it is useless. It asks for things I don't know how to provide and many of the questions ask me to apply for more forms. Even then there are year long waiting lists and the housing provided is generally completely unsuitable and in the same areas where I would simply be targeted for further abuse.

There is also the fact that my living conditions make it imposswible to think straight or concentrate on some things for more than 5 seconds without my brain just starting to shut down as if I'm about to throw a tantrum and destroy the form without having any intention to do so.

Asking on a forum is basically my last resort.

Briefly: I am housebound with autism and cannot complete my long overdue university studies because of seemingly endless noise and harrassment putting my brain through a meat grinder every day.

Are there any autism support services in the UK/Scotland which help people with autism find quiet places to live, and help them figure out how to apply for the appropriate benefits to live there? And no I don't mean a hostel or shared living, I mean away from people. In some cottage or something that is too far away from any amenities for anyone else to want to live there, resulting in an affordable price.

I want to be able to provide for myself but it is impossible with autism in these living conditions, and I lack whatever function is necessary to know how to escape them. I'm not allowed to learn or sleep or recover or do anything at all.

Parents
  • Which service would that be?

    I once phoned the social work department that I found through the local council's website but they were quite rude and didn't seem to understand why I would contact them for help or guidance in finding out how to move house, even after explaining about being housebound with a mental disability and being unable to function under the pressure of social situations. They did not seem to know why they would be expected to assist an autistic person in that way or really in any other way whatsoever.

    They asked me "what do you expect us to do about it?", and of course I don't know that, nor do I know how they would expect me to know that. If I understood what to do and how to handle the situation then it would not make sense to ask a help service for advice and assistance.

    I don't think these people are trained in any way to deal with people who have autism, they are just average moody people who dislike weirdos and probably just couldn't get a job elsewhere, and of course I am certainly not trained on how to communicate with them either, to explain my needs or even find out who the correct people to ask are.

    It is unlikely that I will succeed in getting appropriate help from any service which is not specifically designed for people with autism, staffed by people who are trained to communicate with them. It is starting to seem like such things don't even exist. There are charities who claim to exist for the purpose of helping people with autism live normal lives, and they have fancy websites about this to attract and accept donations, but accepting donations appears to be the extent of what they can actually do in reality, perhaps to pay for fancier websites listing more services which they do not actually provide when contacted.

Reply
  • Which service would that be?

    I once phoned the social work department that I found through the local council's website but they were quite rude and didn't seem to understand why I would contact them for help or guidance in finding out how to move house, even after explaining about being housebound with a mental disability and being unable to function under the pressure of social situations. They did not seem to know why they would be expected to assist an autistic person in that way or really in any other way whatsoever.

    They asked me "what do you expect us to do about it?", and of course I don't know that, nor do I know how they would expect me to know that. If I understood what to do and how to handle the situation then it would not make sense to ask a help service for advice and assistance.

    I don't think these people are trained in any way to deal with people who have autism, they are just average moody people who dislike weirdos and probably just couldn't get a job elsewhere, and of course I am certainly not trained on how to communicate with them either, to explain my needs or even find out who the correct people to ask are.

    It is unlikely that I will succeed in getting appropriate help from any service which is not specifically designed for people with autism, staffed by people who are trained to communicate with them. It is starting to seem like such things don't even exist. There are charities who claim to exist for the purpose of helping people with autism live normal lives, and they have fancy websites about this to attract and accept donations, but accepting donations appears to be the extent of what they can actually do in reality, perhaps to pay for fancier websites listing more services which they do not actually provide when contacted.

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