Help, I feel lost

I am a woman who is married with 5 kids.  I was diagnosed in the last year with high functioning ASD  and felt very positive about the whole thing as it answers a lot of questions I had about why I behaved the way I did when I was young and how I behave now.  

I got myself through university and trained as a health care professional.  I worked in a very busy and sometimes daunting environment.  I was very unhappy there. I didn’t fit in, got comments made to me about taking longer to organise myself etc etc.  But I was very good at my job as I could connect with clients and families.  Sometimes getting too emotional in the process and taking on their worries as my own.  This again was exhausting.  

I have moved settings now and work with younger clients who may have ASD among other problems.  I disclosed to my supervisor and to my surprise was met with questions like why I arrived at thinking I have ASD and how they thought I was normal.  This got into a very awkward discussion of how socially awkward I feel.  

I explained that I am professional and can connect with people in the structured environment of work and am very focused.  Basically justifying how I have been able to work in my profession for the last 9 years.  I feel like she was asking me how I can do my job and see traits and problems that ASD clients have when traditionally ASD in itself is associated with poor communication.  

I have been trained over the years to learn how to make people like me.  It is exhausting but I can do it.  Also I am very analytical and can focus on what is going on and can project the problems I see into what problems the client can have in the future.  This is insight I have learned over he years through experience and learning.  

I guess what I am getting at is that, with my diagnoses, I feel now that my ability to do my job is being questioned by my new manager.  This upsets me greatly.  I worked very hard, and struggled to navigate the social gauntlet of university and the work place, now to be faced with this.  

In turn, will health professionals like the GP and health visitors automatically assume I am a terrible parent as well.  I just feel lost.  I’ve never felt like I fitted in, have learned to not speak at times when I would like to for fear of saying the wrong thing.

Sometimes when I do let people see glimpses of the real me, I get funny looks as my humour doesn’t match theirs or I can seem a bit immature in my silliness.  This is something I have learned from even primary school where my class mates made nasty comments when I made up little songs or acted ‘uncool,’  

My family and friends for the most part get me.  As u can imagine, they are a very select few.  My husband has a similar sense of humour and we get on great but my ‘organised chaos’ approach does sometimes cause conflict from time to time.

Has anyone any idea what I can do or any similar experience?  I wish I hadn’t disclosed this to my boss as I now am in a state of panic.  

  • @NAS38066

    Could you ask your manager directly what they are actually thinking?

    You will probably find it's not what you are imagining.

    I supervise staff at work (social care) and most people project onto others to a greater or lesser degree their own fears and desires. It's quite surprising some of the stories that people have and how they routinely reinforce and perpetuate these without seeking to challenge their belief.  

    The only way to really know what someone is thinking is by asking them.

    I think most people in a supportive and open environment will give an honest answer when asked and I'd expect a well-managed health team to cultivate this type of culture.

    As my forum name suggests I'm undiagnosed but have strong suspicions I may be on the spectrum. It's through reading the work of Prof. Tony Attwood, Sarah Hendrickx and a recent interview experience that I've started to seriously consider ASC. 

    From what I've read over the past 2 months, my understanding of Autism has really broadened beyond my existing understanding of ASC (I work with adults with learning disabilities and ASC), especially in regards to the more subtle presentation and the scale of the misunderstanding created by the word 'spectrum' when Autism is characterised by a spikey ability profile. 

    Per previous comments, I do think that there's an opportunity to direct your work place towards an updated evidence based understanding of ASC to include the more subtle presentation, masking / camouflaging strategies and autistic exhaustion & burnout. 

    As you work with children with suspected ASC then there are also opportunities in supporting those parents who may also be on the spectrum but without a diagnosis. I can imagine that your 'insider' knowledge could be of particular benefit here sign-posting parents to adult ASC services and championing and developing new services to support autistic parents with autistic kids. 

    I recently informed two managers I work with that I'm seeking a referral for ASC. I could see that there was possibly some initial scepticism (I work with people with very obvious and spikey profiles), but when I described more of my quirks and how I think I fit the diagnostic criteria my managers seemed to be more open to this possibility. 

    I hope that you are able to dissolve your fears via a chat with your manager and continue the conversation as to how this may benefit the development of your team. 

    As a starting point you could direct them to the free CPD accredited NAS 'Women and Girls' module:

    https://www.autismonlinetraining.com/enrol/index.php?id=44

    And the Futurelearn 'Understanding Autism' module for when it comes back online:

    https://www.futurelearn.com/courses/autism

  • Thank you all for the information.  I’m really grateful that you took the time to reply.  This all seems like a mind field and just like my life always feels, this feels like a car speeding with no breaks down a hill.

    I’m hoping that my employer has common sense. It’s not like all of a sudden I can’t cope with my work.  Although I have changed jobs, the skills I have are what got me the job in the first place.  As always, I worry what is coming down the road instead of waiting until it happens.

    I worked hard to get where I am so I’m determined not to just avoid it all as I would likely have done in my youth when things got too much.  The discussion I had was so awkward and I didn’t think it was really appropriate at the time but didn’t have the confidence to just say that.  

    I felt obliged to explain what I found difficult because it was me that brought it up.  I’m hoping to get a referral to some support so I can deal with these types of situations again for that’s what I lack.  I have never been able to stick up for myself.  

  • I can do my job and see traits and problems that ASD clients have when traditionally ASD in itself is associated with poor communication.  

    It is truly ironic that this would be used as a criticism. Surely you can see the issues of ASD clients more clearly because you yourself are autistic not in spite of it. If there were any justice in the world, any team like yours would be glad of the insight you could bring to the job and would be encouraging you to share this with your colleagues. As an autistic person myself, I would be relieved to know that I was working with someone who was both professionally qualified and had some innate experience of my condition. It may be worth trying to make this point with your manager; that with a few simple adjustments, your condition would not impair your performance, on the contrary, it makes you uniquely qualified to deal with some of your clients.

  • Hi, do you belong to a Union, like UNISON, a similar situation happened to me, which you can read on earlier threads about how I lost my job when I came out as 'ASD' at work.  However they have to make reasonable adjustments to accommodate you and some employers are ignoring the 2010 Equality and Diversity act.  Like you I came out this year and my senior Management attitude completely changed towards me, someone with a physical disability is also having difficulties with the same senior management, as we keep in touch after work.  I now belong to various campaign groups like 'Black Triangle' Autism UK and the NAS, which campaigns on behalf of people within society who have disability labels.  We have a lot of strengths and a lot to give but we are vulnerable in this day and age due to austerity measures, cuts in workplaces etc.  I hope that I have been of some help and do not give in to the Managers, get someone to speak for you and alongside you,  record everything, so you don't get bullied out of work.

  • I'm not in that position myself, but read or heard stories that sounds pretty similar about autistic people working with autistic clients and having problems with typical colleagues, so hope other people can answer properly.

    It sounds rather like your manager may have a rather narrow idea of 'ASD' in relation to the young clients and may be trying to see how that applies to you, after you disclosed, to see if it has any bearing on how you do the job, not whether you can do it.  Clearly you have been doing a related job and were qualified for this job, and nothing has changed just because you have a label. Or another way of looking at it is that she may want to know whether she needs to make any reasonable adjustments so you can do the job. Do you think there are any things that would help, either in getting the job done or to make you more confident in dealing with any problems that arise? If you get a chance to respond on that, then it may help frame it as an Equality Act issue just in case that's not already being considered.

    questions like why I arrived at thinking I have ASD and how they thought I was normal

    You mean there was an assumption that no one working there was autistic? Or that they didn't believe you could be autistic? Or that your behaviour passes perfectly as neurotypical?

    From those actually considerate typical people around me who know a bit about autism/ASC, I have heard stereotypes ('don't like strong emotion', 'don't like change' etc) that don't exactly help self-confidence. It's easy for them to forget that autistic people are very diverse, more so than they've been taught or from experience. So it is with 'associated with poor communication'. Any difference is more complicated than that: it doesn't mean you can't communicate and in fact you may be able to communicate in a particular domain more clearly than most people, and you may find you communicate with autistic clients better than typical people do. That positive experience is something I've heard more than once, and supports the idea of being 'on a different wavelength'. A communication problem is not an individual thing, but between two or more people. I wonder if they have ever heard Damian Milton's description of the 'double empathy problem'. It may be a difficult question worth asking, but if the workplace regularly works with autistic clients and they have at least one autistic staff member, have they ever had any autistic-led training?

    will health professionals like the GP and health visitors automatically assume I am a terrible parent as well

    That seems like an unrelated situation, although you may want to consider how you disclose there. I would hope your family and friends can support you there.

    Hope I haven't misinterpreted what you wrote too badly.