Question for adult diagnosees

Hi,

I can't tell whereabout in England you live, so I'm not sure how your area handles ASD assessments. I live in North Manchester, where assessments are currently sub-contracted out to a private company based in the South, but who offer services in a few different regional centres.

Whilst I was verbally given my positive diagnosis in early April last year, I didn't receive the formal written report until many months later, sometime in August I think (over a year after the original referral request by my Doctor). I did query why it took so long to compile a written report & was just told they were very busy!

When my report finally arrived though, it was a lot less formal than I had expected & seemed to take the form of a long letter written to my Doctor detailing how the diagnosis was made, & which contained many very personal details. This is probably due to the way sub-contracted referrals for ASD assessments are made though, since technically my Doctor was their client rather than myself.

If you were expecting the report to have some sort of 'Summary Page' just confirming the diagnosis & which could be shown to organisations that you did not necessarily want to know about highly sensitive personal details, then you might need to request this in advance.

If you are much luckier than I was then you might receive your report quite soon, but I wouldn't hold your breath. All joking aside though, I hope it doesn't take too long.

Hi,

I can't tell whereabout in England you live, so I'm not sure how your area handles ASD assessments. I live in North Manchester, where assessments are currently sub-contracted out to a private company based in the South, but who offer services in a few different regional centres.

Whilst I was verbally given my positive diagnosis in early April last year, I didn't receive the formal written report until many months later, sometime in August I think (over a year after the original referral request by my Doctor). I did query why it took so long to compile a written report & was just told they were very busy!

When my report finally arrived though, it was a lot less formal than I had expected & seemed to take the form of a long letter written to my Doctor detailing how the diagnosis was made, & which contained many very personal details. This is probably due to the way sub-contracted referrals for ASD assessments are made though, since technically my Doctor was their client rather than myself.

If you were expecting the report to have some sort of 'Summary Page' just confirming the diagnosis & which could be shown to organisations that you did not necessarily want to know about highly sensitive personal details, then you might need to request this in advance.

If you are much luckier than I was then you might receive your report quite soon, but I wouldn't hold your breath. All joking aside though, I hope it doesn't take too long.

My letter/report took about three months to arrive. I think a fair amount of the delay was just being typed up by the admin staff at the mental health team. It was about three pages of personal history that I'd given them (so a bit incomplete), plus an ADOS-2 score and a recommendation that my current depression be looked at (a good recommendation to have, but ultimately didn't help get any support). I think I chased the MHT and/or the GP once or twice.

The idea of a 'summary page' is good. I'd agree anyone wanting to see it shouldn't need to know the personal details. It probably is worth asking.