Misdiagnosed?

Hey

Sometime after being diagnosed at the end of last year, I've had this nagging doubt in the back of my mind that I've been misdiagnosed. I can't say I'm 100% happy with how the process played out. I went to see a specalist for a diagnosis at Bushey Field's Hospital in Dudley, but my session was no more than half an hour to three quarters of an hour answering some questions. No tests or anything. My mum went on her own sometime after, though she was seen for longer - an hour. It took me 3 years to finally see someone and options around my area (Uttoxeter, Staffordshire) are very limited, so I fear I may have a hard time getting a second opinion if I requested one. :(

Any advice or pointers?

Parents
  • This bears no resemblance to my experience and it really interests me.I went to my GP about some medical problem totally unrelated to Autism.He asked if i would see someone so i did ... think she was a social worker .... she asked if i had ever had a diagnosis of Aspergers and i said no.I was then referred to Outlook SouthWest and had to ''see'' a specialist over many months who contacted my parents, my school my place of work.I went through a long protracted series of tests and meetings and was formally diagnosed after a second opinion as having Aspergers Syndrome ... i then had to attend further meetings with a specialist to help me with the diagnosis and had to see a clinical psychologist for almost two years after that.It was a LONG process ........ when i went to a day center i met a woman there who said she watched a TV programme about autism then she said she went to her GP and told her she had Autism , the doctor apparently said .. ok then and she was ''diagnosed'' as having Autism.It seems that people are having many varied diagnostic experiences..... i have been in and out of care most of my life and in many mental hospitals pre diagnosis and over the years have met many people who have been diagnosed as Aspergers but who clearly are not ....... a ''DIAGNOSIS'' is just someones opinion of you and as such is relatively meaningless .... i KNEW long before i was diagnosed that i was not ....'' NORMAL''  and the diagnosis has helped me immensely.I also went through a denial phase and resented someone labelling me but now i am ok about it..... all that matters at the end of the day is you are true to yourself, be nice to people and forgive them...........

Reply
  • This bears no resemblance to my experience and it really interests me.I went to my GP about some medical problem totally unrelated to Autism.He asked if i would see someone so i did ... think she was a social worker .... she asked if i had ever had a diagnosis of Aspergers and i said no.I was then referred to Outlook SouthWest and had to ''see'' a specialist over many months who contacted my parents, my school my place of work.I went through a long protracted series of tests and meetings and was formally diagnosed after a second opinion as having Aspergers Syndrome ... i then had to attend further meetings with a specialist to help me with the diagnosis and had to see a clinical psychologist for almost two years after that.It was a LONG process ........ when i went to a day center i met a woman there who said she watched a TV programme about autism then she said she went to her GP and told her she had Autism , the doctor apparently said .. ok then and she was ''diagnosed'' as having Autism.It seems that people are having many varied diagnostic experiences..... i have been in and out of care most of my life and in many mental hospitals pre diagnosis and over the years have met many people who have been diagnosed as Aspergers but who clearly are not ....... a ''DIAGNOSIS'' is just someones opinion of you and as such is relatively meaningless .... i KNEW long before i was diagnosed that i was not ....'' NORMAL''  and the diagnosis has helped me immensely.I also went through a denial phase and resented someone labelling me but now i am ok about it..... all that matters at the end of the day is you are true to yourself, be nice to people and forgive them...........

Children
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