Diagnosis frustration

Just need to sound off really. Got referred by my doctor A YEAR AGO, filled in the questionnaires, got put on the waiting list for a diagnostic assessment but have been told I could be waiting AT LEAST another year. (Not enough resources apparently)

So I have finally decided to go private. I found somewhere local that claims to be able to complete the process within a month. Great I thought.

SO I contact them. They explain that they send diagnostic tools (I assume questionnaires) then I have a 2-3 hour face to face and they will make a diagnosis at the end of that. I tell them yes. They then say I need a referral letter from my GP, and a brief history of anything medical that is relevant. I tell them I already got referred and am on the waiting list so they said that a copy of that letter would be fine. Please can I ask my GP to email or post it to them. simple....................NOT....

SO I phone my GP and they tell me they can't. There is no-one available to discuss the possibility of me having access to my records, and they can't just give me a copy of the letter. They said that how it is done is that the organisation who are doing the assessment must contact the surgery themselves and ask for it, then they can tell the doctor exactly what they want.

SO I contact the private company again and they say no it's not up to them to contact the GP it's up to the GP to refer me!

SO I contact the GP again and they say I'll have to talk to the doctor direct and discuss it with them. I then try to make an appointment but they are booked up for the next THREE WEEKS. 

I am SO frustrated. Surely it should be simple for them just to print off a letter that is already on my notes and give it to me!

WHY OH WHY is the diagnostic process SO LONG! 2-3 years is completely unacceptable! 

Parents
  • Could you possibly write to the GP requesting they refer you to the relevant service (I have made requests of my GP before in letters when I couldn’t get an appointment and this has been accepted)?

    I feel for you - the diagnostic process is so long. For me personally (and I was a child at the time), it took 3 years from the psychologist saying she thought I was autistic to me having the diagnosis. In some places I know the wait times are currently as long as 48 months, which is just completely unacceptable. I hope you get your diagnosis soon.

Reply
  • Could you possibly write to the GP requesting they refer you to the relevant service (I have made requests of my GP before in letters when I couldn’t get an appointment and this has been accepted)?

    I feel for you - the diagnostic process is so long. For me personally (and I was a child at the time), it took 3 years from the psychologist saying she thought I was autistic to me having the diagnosis. In some places I know the wait times are currently as long as 48 months, which is just completely unacceptable. I hope you get your diagnosis soon.

Children
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