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Challenge of getting a diagnosis for my daughter when she masks so well when she is not at home...

J.B.

Hi all, seeking advice please, particularly from UK based parents/carers perhaps going through a similar process. For those of you with undiagnosed autistic children, especially daughters, who mask so well at school yet all the behaviours are present at home, have you managed to receive a diagnosis? Even pursuing a private assessment is proving difficult as school say there are no difficulties/differences present and assessment requires behaviours observed in multiple settings. I feel like we are just going round in circles and fighting a losing battle. I'm seeking a diagnosis for my daughter so she can hopefully understand herself better. I have researched a lot about autism in girls and women and so many accounts of women getting diagnosed later in life state how they wish they had been diagnosed sooner, as it would have helped them to know why they found certain things in life difficult or why they experienced certain things differently. Thanks in advance.

Parents

  • My son was diagnosed last December and is year 5. He was and still is to some extent high masking. He has had therapy sessions for 18 months now, his therapist mentioned early on that she strongly believed he was autistic. The good thing from that was that she wrote us a report for the school and Gp which backed up our claims. The school went from “there’s nothing going on” to now being very supportive. Maybe some sessions with a professional who specialises in neurodivergent individuals could be helpful to get things rolling? 

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  • My son was diagnosed last December and is year 5. He was and still is to some extent high masking. He has had therapy sessions for 18 months now, his therapist mentioned early on that she strongly believed he was autistic. The good thing from that was that she wrote us a report for the school and Gp which backed up our claims. The school went from “there’s nothing going on” to now being very supportive. Maybe some sessions with a professional who specialises in neurodivergent individuals could be helpful to get things rolling? 

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