Fed up (understatement!)

Hi all 

Not sure why I'm posting, just feel so low and tired today.

We noticed at 2.5 that our daughter was showing signs of autism as well as sleep problems hv advised us to wait awhile before pursuing anything as daughter had complications after birth that we were warned could cause delays in development.

At 3.5 took her to gp about sleep and repetitive behaviour and diet, he laughed at me but referred her to paediatrician who agreed she was showing signs he asked gp to refer her to camhs so I waited gp it turns out never referred her.

At 6, school nurse got involved and got camhs to come out and see her they agree she needs assessment great! No they mess up referral and daughter is rejected due to the wording on her referral letter! School nurse stands by us sets up ehp gets us a support worker (didn't want) all to document everything to support re-referral.

Daughter is now 8 and still not sleeping she was making herself Ill (as well as me) tried gp again told they can't help. So I brought her melatonin gummies and it worked for the first time in years she was sleeping and happier in herself but school nurse found out demanded I stop and take daughter back to gp as it's best from doctor, so I do this and guess what they won't help and don't want her having them so we are all back to no sleep constant meltdowns. It just seems ludicrous that I am the bad one for doing something that actually helped my daughter and they do nothing! Apparently sleep deprivation is better for her! 

Sorry pointless rant I know just feel so lost 

Parents
  • Did they give a reason for advising against melatonin gummies or why they wouldn't prescribe melatonin tablets? In the SEN school I work in lots of the children take melatonin for sleep problems. I think the tablets are called circadin. If they are not going to help, they could at least justify their reasons.

Reply
  • Did they give a reason for advising against melatonin gummies or why they wouldn't prescribe melatonin tablets? In the SEN school I work in lots of the children take melatonin for sleep problems. I think the tablets are called circadin. If they are not going to help, they could at least justify their reasons.

Children