Does anyone else feel like some NTs have a weird fascination with autism?

I am absolutely not saying that all NTs are weirdly interested, but I had an experience lately that really got on my nerves and is still bothering me.

A couple of weeks ago my grandparents had a friend to stay, and this friend used to work in schools before she retired, with autistic students and other students with special educational needs, but she was particularly keen on working with autistic students. Whilst she was at their house, my grandparents phoned me to ask if I would go over and chat to her. I'd heard them talk about her before and how "interested" she was in my being Asperger's and as I'm actually quite sensitive about the subject I wasn't sure I wanted to, but as my grandparents are amazing and I always want to please them, I said yes, sure, and went over.

So I get there and I meet the friend, and the first question she has isn't, "How are you?" She immediately asks me, "What goes on in your head?" That is the first question she asks, in that many words. I have only meet this woman sporadically throughout my life, on three occasions at most, in twenty years. I remember being taken aback at the time, but now I just feel boiling mad. Like, you wouldn't ask a neurotypical twenty-year-old girl that question, so why ask me just because I'm Aspie and you're "interested"?! Remembering the syrupy voice she used just makes me even more cross. It was as if she was talking to a five-year-old. To be honest I can't exactly remember what I said in reply, but I think I said something along the lines of, "Well, emotionally I struggle, and I get quite anxious, but apart from that nothing particularly interesting goes on in my head really. Not things that other people would find interesting anyway."

Then we got onto the subject of me being a writer, and my poetry and things, and she asked, "So could you make up a poem now for me? From your head?" And I was like, "Well, I'd have to go and sit down and write it. It wouldn't be an immediate thing." And she looked stricken and was like, "But people with conditions like yours, they can do that sort of thing, can't they? Just make things up from their heads? You must be able to." 

Me: "No, really, I can't. Unfortunately. It takes time and effort. I'm not so good at being put on the spot." *Fake laughter*

She then started telling me stories about the autistic children she worked with, including one about a boy who used to imagine that he was projecting films onto the backs of his eyes from his brain and showed her by drawing a diagram (which does sound rather cool, I have to admit). Then like some excited Labrador, "Can you do that? Can you do that?" And she kept going, "Of course, I asked if I could work with children like you because I was interested. I just find you all so INTERESTING!" She proceeded to grill me, asking me about my plans to go to uni, and as I was unable to talk in detail about my mental health (aside from my Asperger's) and how it looks like it won't be possible for me to go this year, she was like, "But you must go! Because otherwise, people like you get stuck with their parents all their lives. It's so sad." Then my grandma joined in like, "I try and tell her mother not to be so over protective, she should go to university, she is easily clever enough" etc etc etc. It felt like I was being descended upon by vultures or something.

At this point I was virtually crying, as in, tears in my eyes, trying not to let them spill over. And I might suffer from emotional dysregulation, but I have gone whole therapy sessions without shedding a tear. So I was upset.

This attack ended with the friend saying, "You mustn't be so sharp with her. People like her are very sensitive, aren't you, dear? It's what comes of having such wonderful minds!"

All this happened a couple of weeks ago, but thinking about it still makes me sick to my stomach. It seemed ridiculous and kind of worrying to me that his woman was so fascinated in a medical condition. I hated the way she spoke to me, and I don't care if she was a kind old lady; it just made me angry and extremely uncomfortable. I felt like an exhibit in a zoo. To be honest, this isn't the first time that I have experienced this sort of thing: people being openly fascinated by autism, and asking me what my "power" is (er, I'm Aspie, not Supergirl!) or how quickly I can solve a maths problem (I barely scraped my necessary C at GCSE Maths, and that was with a lot of hard work and extra tuition, and on my third go at the exam!). I have to say that as a sufferer I really can't see why autism is so fascinating, and it frustrates me because again, it's the stereotypes they get excited about! Has anybody else experienced this weird fascination with autism?

Parents
  • I never like the 'them and us' scenario/situation in conversations, but yes, it does happen and yes i have noticed this pattern. unfortunately. my best advise is just make for the door metaphorically and possibly literally.

    "I know I should never have gone when my grandparents asked, but that's the thing with me: when people ask me to do something, I feel I have no choice."<--- i have the same issue, it's an autistic thing, we can never react well in the moment when something comes out of the blue, we never know what the right thing to do is (or how to respond in the moment to comments that come flying at us) and we end up just going along with things because we don't know what the right thing to do is. and then the issue compounds.

    i've learned to try to do the wait thing, which is when i get instances where demands are put on me which i don't know how best to react to, i ask to be given time to think about it. if the person persists, i say no, and then if they persist in me doing something, i keep saying no, i'm sorry, i can't, i'm in the middle of something, i don't have time to think about this right now. i don't get it right every time but it does help sometimes.

    I think perhaps because your grandparents asked you, you thought: okay, for them, i'll do it for them. and you get on well with them. and that their house is a safe place. but in actuality it was all about the other person's needs when you got there and you ended up getting bombarded with an interrogation. 

    Maybe it might be an idea as you get on well with your grandparents to just say for future reference: look, what happened really wasn't very nice, it has upset my equilibrium a bit, please in future if people ask, i don't want to be in that kind of situation again. hopefully they'll 'get it', they sound on your side too.

    :)

Reply
  • I never like the 'them and us' scenario/situation in conversations, but yes, it does happen and yes i have noticed this pattern. unfortunately. my best advise is just make for the door metaphorically and possibly literally.

    "I know I should never have gone when my grandparents asked, but that's the thing with me: when people ask me to do something, I feel I have no choice."<--- i have the same issue, it's an autistic thing, we can never react well in the moment when something comes out of the blue, we never know what the right thing to do is (or how to respond in the moment to comments that come flying at us) and we end up just going along with things because we don't know what the right thing to do is. and then the issue compounds.

    i've learned to try to do the wait thing, which is when i get instances where demands are put on me which i don't know how best to react to, i ask to be given time to think about it. if the person persists, i say no, and then if they persist in me doing something, i keep saying no, i'm sorry, i can't, i'm in the middle of something, i don't have time to think about this right now. i don't get it right every time but it does help sometimes.

    I think perhaps because your grandparents asked you, you thought: okay, for them, i'll do it for them. and you get on well with them. and that their house is a safe place. but in actuality it was all about the other person's needs when you got there and you ended up getting bombarded with an interrogation. 

    Maybe it might be an idea as you get on well with your grandparents to just say for future reference: look, what happened really wasn't very nice, it has upset my equilibrium a bit, please in future if people ask, i don't want to be in that kind of situation again. hopefully they'll 'get it', they sound on your side too.

    :)

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