Aspergers label being used

I've noticed more posts recently where people are saying they have received an autism diagnosis but then they add Aspergers in brackets.

It has been more than 12 years since it was dropped as a clinical term so I'm wondering why it seems to be talked about more in these last few weeks.

It was just a passing curiosity.

  • thought same and was going to comment too but didn't.

    I also didn't get a level on my diagnosis at the start of the year.  The important thing for me was the diagnosis. 

    As we have spiky profiles then I expect our supports needs are spiky not linear too, so how do the levels cope with that ?

    Hence not sure the levels are really of use to anyone at all.  If anyone can enlighten me on their value  ? seeing as I'm apparently level-less but Autistic 

  • When I was diagnosed it was Aspergers, rather than autism, Maybe people are confused by levels, I know I am, people talk about levels, aspergers, ND and a whole alphabet of other things. Maybe people feel more comfortable with aspergers as an identifier because even though it's not used in diagnosis anymore people know what it is?

    It still feels like people with lower support needs are being ignored for the needs we have and not really accepted for the things we do well. I feel like we're either expected to be Elon Musk or dribbling in a corner somewhere, the rest of us, I suspect the majority are just left to get on with it.

  • I'd noticed that and had been wondering the same thing. Nearly commented on one of the posts to ask but didn't want to cause any offense.

  • People with intellectual disability and autism are often termed 'profoundly autistic', but people with intellectual disability who are also very outgoing and sociable are not called 'profoundly neurotypical'.

  • My only experience of Grandways was in Hull.

    At the till, cashier holds up an item you are buying, "Sharon, can I have price on this?"

  • I have only known about my Autism (ASD 1) for a few months but as I have learnt about it, I have come to wonder about the wisdom of putting all levels of autism under one umbrella and just calling it autism. I hate the term "high functioning autism" as I don't feel I function highly (well, maybe in some respects!) but I function, for want of a better term, "normally". I can care for myself and my family, earn money and live a comfortable life.

    Although the science says that my brain type is similar to people who are level 3 ASD, I don't feel like there is much commonality between myself and level 3 autistic people. I always worry that that sounds like I am trying too hard to distance myself and make sure that everyone knows I am not like that and, to be 100% honest I can't deny that there is an element of that, but mainly I don't want to belittle the huge difficulties that a level 3 autistic person has, because my life is nowhere near as impaired as that.

    I guess also that using Asperger's is just a quicker way of using a term that the layperson understands, without the need to explain all about the different levels etc.

    Also, if you have referred to yourself as having Asperger's all your life, you may not want to change that, just because it has been decided that the name is problematic.

    I don't personally use the term Asperger's to describe myself but I may use it as a reference point to help people understand.

  • I didn’t know much about the name till I recently read more about it. I don’t think I would feel comfortable using that label but that’s just my personal opinion. 

  • On the NHS website autism and learning difficulties are lumped together. Some way down it states the two are independent, nevertheless, the link is implicit in the headings.

    This may influence the desire for a separate label.

    If you had no developmental delays, are of above average intelligence and don't have issues with academic type learning, then it doesn't seem obvious to me that having a single bucket to put everyone into is helpful. While everyone may need support of some kind, I expect it looks quite different for different groups.

    It may be preferable from a clinical perspective to group them, to limit misdiagnosis and to subsequently treat people on a case by case basis, but I am unconvinced.

    I've seen the argument that putting everyone together means a larger group with more of a voice, and the counter argument that resources are taken from those that need it most. I don't know what the best approach is.

  • It seems to me that people are using Asperger's in place of their diagnosis of Level 1 ASD or just ASD. I think they want to emphasise that they are at the 'more functional' end of the spectrum.

  • Referring to someone or something by an obsolete or out of date term is normal human behaviour and not unusual. 

    For example, I grew up where my closest supermarket was called Grandways,  over time it changed it's name to Presto, kwiksave  Safeway,  Morrisons,  Sommerfield, Co - op,  but locals are still Referring to it as Grandways,  if someone says Co - op, they look confused, "Oh you mean Grandways" is the response.