I have ADHD-PI; now I've been diagnosed with ASD but not sure I agree with it. What now?


A therapist referred me for NHS ASD assessment early last year and at the time I was surprised but thought it was worth exploring.

While I was waiting for the assessment to happen, I stumbled across inattentive ADHD and it made so much sense I made a decision to throw money at it and rush through a private ADHD assessment. Was diagnosed with inattentive ADHD, and initially put on medication that seemed to take me from being a slightly eccentric chatterbox with terrible executive dysfunction to being unable to string two sentences together and with no energy to interact with anything or anyone. 

The ADOS happened while I was on said medication. 

I was taken off the medication and put on a different one. Everything, and I mean everything, got better. I will always have ADHD, it's not given me a different brain or anything, but I am functioning like an adult for the first time in my entire life, and my anxiety is all but gone as a result. And as well as the executive function improvements I expected, I am coping better with change, I am socialising better (I am *reading* people better, I assume because I'm actually taking in the information they're transmitting). Everything has improved. 

After the medication switch my ASD outcome appointment happened and I was diagnosed with ASD. I *just* met the ADOS threshold at 7 points (I am female, and was told this is fairly common). They said my communication difficulties were very slight, and that my verbal communication was 'unusually good', but that most of the points came from reciprocity. 

I am not convinced.

The medication I was on on the day of assessment seemed to hugely worsen my social skills, and after the switch they got better - much better. If this is the case, surely that means they weren't 'real' ASD traits and were a function of the ADHD? Nobody at the centre I was assessed at has expertise of ADHD, and so nobody has been able to tell me if the potential overlap of the two conditions has been taken into account (because it hasn't).

What now? My gut feeling is that this isn't right. Does it matter? Can I get a second opinion? 

I really don't know what to do and it seems like the opposite problem to what a lot of people end up with. Everyone on this forum seems very very sure and it's making me feel worse. 

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