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Autistic Inpatient

AnnieApple20

Hi there,

I am the parent to an autistic young person who has been an inpatient for several years.

To cut a very long story short they are stuck in the system. 

They have long periods of being settled and risk free , however because of the restricted and unpredictable environment they have moments of meltdown, this causes them to harm themselves. 

I do believe their behaviours are due to the non structured environment without any meaningful activities for them. They are currently struggling with executive dysfunction and are sleeping mostly throughout the day. I have asked for support for them from the hospital, however it is falling on deaf ears.  

My questions are: 

Is anyone else going through this?

What support or advice can anyone offer?

Is there any support to help get my young person back home?

I understand my role as 'nearest relative' however I feel I need to pick the right time to appeal their section. 

Can anyone offer any words of wisdom/advice?

Many thanks

Annie x

Parents

  • I wonder what strategy the organisation has for future care?

    Having been involved with health care for some time I've seen systems that put people in a "box" of categorisation and then no longer pay interest in them.

    Tricky to "take on" the system as an insider I found - even harder as an outsider.

    Maybe if you could form an affiliation with someone "inside" the system who is brave and influential enough to champion the cause of your child?

    Maybe someone from an external body?  

    You and your child have my heartfelt best wishes  

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  • I wonder what strategy the organisation has for future care?

    Having been involved with health care for some time I've seen systems that put people in a "box" of categorisation and then no longer pay interest in them.

    Tricky to "take on" the system as an insider I found - even harder as an outsider.

    Maybe if you could form an affiliation with someone "inside" the system who is brave and influential enough to champion the cause of your child?

    Maybe someone from an external body?  

    You and your child have my heartfelt best wishes  

Children
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