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Misdiagnosis

BlueHawk

How do you 'get over' a misdiagnosis? They said I have Borderline Personality Disorder over 10 years ago. I got autism diagnosis privately about 9 years ago. I havent had anything to do with mh services since my autism diagnosis. These past 12 months have been hard. I've been referred to cmht. I've had the assessment. They have put personality disorder as my diagnosis. 

I'm absolutely distraught. It will never leave me and it influences how I am treated by health professionals , both mental and physical health professionals. I don't meet the criteria now and I don't believe I did then. 

Anyone been through similar and got through it? I don't think I need any 'help'from mh services as it seems nothing has changed in nearly 20 years. I'm considering private therapy if I can afford it.

Parents

  • I am sorry to hear of your problems.

    To clarify, are you saying you were misdiagnosed with Autism ?   Or misdiagnosed with BPD ?   It reads as if you are saying the former.

    Some conditions confuse diagnostics of another.  

    This should / could have been pointed out to you at the time of your historic assessments.


    We cannot give specific medical advice here - as per the forum rules - but I am trying to understand the post properly so perhaps I can give some advice based upon past experience. 

  • in reply to overwhelmed & underwhelmed ( O & U )

    I can't see whether my reply has already posted. I'm new to the forum.

    They say I have BPD and I don't, I'm autistic. 

    I am interested to hear other people's similar experiences. I'm not after medical advice. 

  • in reply to BlueHawk
    BlueHawk said:
    They say I have BPD and I don't, I'm autistic. 

    I see.

    BPD can confuse an autism diagnosis.   Other things can too.   For example, PTSD can. 


    You need to make sure that your Autism diagnosis (which you got privately) is actually on your NHS record, as it may not be there -  if it isn't, they may be treating you as if you don't have it. 

    Please speak to your GP about this -  do you have the paperwork about your Autism diagnosis? - if so, take that to the GP with you.  

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