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Newly diagnosed AUDHD woman aged 60!

Lizloz06

Hi 

ADHD a year ago Autism a few days ago. The only word I can come up with for how I feel is ‘nothinged’  The first words I managed to say after being given the Autism diagnosis were ‘I’ve lost so much’ other than that I don’t remember much of the journey home or anything else the Dr said. 
Im multi diagnosed M.E EDS PoTS for a long time and was diagnosed with BPD/EUPD and GAD. I challenged  the BPD at diagnosis in 2018. 
I’m wondering if there are any late diagnosed people on here like me and particularly women who may have experienced similar? I’d be very grateful to hear. Thank you 

Parents

  • thank you all honestly just working out how to reply generally rather than you all separately feels like a win! I am going to take some time just to let it land and am aware that may bring all sorts of feelings up....eventually!

    I was refused an autism referral by St Pancras in June due to a score of 33 on a cut off of 30 on the EQ10 even though the other forms were all well over the threshold. Eventually I made a formal complaint siting gender discrimination diagnostic overshadowing and the lack of understanding around masking. This did result in St Pancras agreeing with some of the points I made and giving dates by which to implement changes. However they stood by their original decision not to assess me even though they admitted to assessing an incomplete file ( my GP had failed to supply some relevant information ) so I have decided that despite my diagnosis in the private sector I will continue to pursue this. I am without SARS information requested ( failure to respond in legal timeline) so have referred to ICO who have advised me it will be 10 months before my case is handed to a case worker. A

    lthough women are talking about this more now and we have more information available the system which could assess us is sill using a male centric lens to do so and we are still being missed and misdiagnosed often with very damaging consequences. I wonder if anyone else has had a similar experience?

Reply

  • thank you all honestly just working out how to reply generally rather than you all separately feels like a win! I am going to take some time just to let it land and am aware that may bring all sorts of feelings up....eventually!

    I was refused an autism referral by St Pancras in June due to a score of 33 on a cut off of 30 on the EQ10 even though the other forms were all well over the threshold. Eventually I made a formal complaint siting gender discrimination diagnostic overshadowing and the lack of understanding around masking. This did result in St Pancras agreeing with some of the points I made and giving dates by which to implement changes. However they stood by their original decision not to assess me even though they admitted to assessing an incomplete file ( my GP had failed to supply some relevant information ) so I have decided that despite my diagnosis in the private sector I will continue to pursue this. I am without SARS information requested ( failure to respond in legal timeline) so have referred to ICO who have advised me it will be 10 months before my case is handed to a case worker. A

    lthough women are talking about this more now and we have more information available the system which could assess us is sill using a male centric lens to do so and we are still being missed and misdiagnosed often with very damaging consequences. I wonder if anyone else has had a similar experience?

Children
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