Hello, from Yet Another Late Diagnosed Autistic Person

Hello everyone,

My name is "Jeff", and I was late diagnosed in March 2024. I believe I've been experiencing 'burnout' for many years.

I'm also trying to get to grips with my identity. Questioning things that I've done or liked doing, and wondering if I really like them.

My long-term depression and anxiety might be confusing things for me, further.

Some stuff that I do, that may give you a better sense of me:

  • I listen to music: XTC.
  • I love Blake's 7 and The Prisoner.
  • I used to play a lot of board games.
  • I dabbled in astronomy.
  • I practice karate.
  • I have a season ticket for Tottenham Hotspur, but I've rarely attended games over the past couple of years.
  • I exercise regularly.

My feeling of mental exhaustion impacts all areas of my life, but doesn't appear to affect my physical energy.

I wonder if 'movement' is something that helps me.

All the best.

  • I have had great social experiences in the last year. But I have to choose. I went to a Rocky Horror film showing for 50th anniversary and I went as Frank’n’futer. I had 8 months and did my research to create a movie accurate costume and makeup. I have a great time dancing all the night after the film to a live band. Who knew I could dance in 5” platform heals?

  • Yes, that's how I understand it as well. Both Autistic and ADHD can coexist (although I'm far from an expert).

    For Blake's 7 I recommend watching the whole thing! But I would, wouldn't I? I'm sure someone somewhere has done some kind of 'condesed' version of the seasons. I've heard that when it was made available in Australia on VHS, that a few episodes were truncated into one, longer episode.

    That's a really good observation you've made about your experience of Gaming Groups. I often like the 'idea' of going to see a show, or an event, but with varying levels of tolerance. I'm at the stage now where I'll shun most opportunities.

    I'm much of a mind like yours about my diagnosis. Wondering who I really am, and who that person was when I was growing up? The masking, the camouflaging, will the real me please stand up!

    I wonder also if had I been diagnosed as a child, it would have helped or hindered me? 

  • It's been rough to be honest. I had looked at both ASD & ADHD for traits for years (read decade+) but wasn't sure or lacked the motivation/money. But I wasn't expecting both. I understand current thinking is they can exist together and are common.

    I'm about to rewatch Blake's 7 original in readiness for the reboot. Unsure if picking up the storyline or justy starting over. I hope the former. I've found I've always been a bit retro-focussed, even more these days.

    I can deal with gaming groups sometimes but not if I'm dealing with other stuff at the same time. I tend to take on too much then break over some unrelated event and end up ditching everything and wanting to be alone for months. I wonder now if it's the ADHD wanting it until the ASD can't cope any more. Maybe I can learn from this somehow.

    Did you have thoughts that you didn't really know who you are? Strange question I know. I always did and still in the throws of working out how I go about that or even if it is to do with my diagnosis.

    I love living here, slower, calmer, less people.

  • Hello , thanks for writing. No need to aplogise. If you can't infodump here with impunity, where can you do it? 

    I haven't read Neil Tyson DeGrasse. Can you recommend a good first book?

    Back when I was using my telescope regularly, one of my favourite vews was that of Jupiter and its major moons. I also managed to find Saturn once.

    Do you write a lot of fiction?

    All the best.

  • Hello  , thanks for your words. I like your "ghost ship" interpretation. I think it can sometimes feel like a 'lag' in time difference between mind and body. Or like you've said, the body is on autopilot and the mind is away doing other things. Or it could be the bloomin' antideptessants, I need to take!

  • Hello  , nice to hear from you. How are you managing with everything? Did you find the various diagnoses help you at all? That's a lot to internalise!

    Always good to find another Blake's 7 fan. I've found myself rewatching a lot of TV and Film from my childhood, and growing-up. Inclusing stuff I missed out on.

    I've moved more towards solo gaming in recent years. I did attend a Board Games club for a while, but I found it difficult.

    I do enjoy walking in nature, mostly with our dog. Rural Wales sounds idyllic.

  • Hello , our Sensei learned under Sensei Ticky Donovan. So the style is based on Ishinryu.

  • Spurs will be interesting next season with all those new teams to play Wink

    PS what style Karate? I'm a brown belt in Shotokai (well it's heavily based on that, it's an independent club)

  • I’m a lat3 diagnosed ASD and ADHD too at 58.i also have or3 ious diagnosis of chronic depression and generalised anxiety disorder.

    Love Blake’s 7 and a lot more retro TV. Love board games too but rarely get to have a group or struggle to attend a club. I’ve resorted to solo board games but I do want to share.

    movement helps me too. But fi4 me it’s dancing to music I love and walking in the countryside. Luckily I live in rural mid-Wales.

  • My feeling of mental exhaustion impacts all areas of my life, but doesn't appear to affect my physical energy.

    Hello Jeff. This resonated with me. My body feels like a "ghost ship" sometimes. The ship sails its known course, but it's like the crew has long gone. However, the ADHD need to move compels me forward. Sometimes, I wonder if it's a warped antidote to burnout.

    I hope you can find a sense of community here, and you're being kind to yourself on the way to peace.

  • Hi and welcome.

    Hope you enjoy chatting with us.

    Blush

  • Oh Agricola was the first game we got, it's brilliant, and Pandemic is great too though not played it as much. Co-op games are a lot of fun, I do prefer working together rather than against.  Race to the raft is brilliant, I think it started as a kick-starter. There's a rules about discussing things before each round, but then you have to stay silent during people's turns. You have 2 tokens per game that allow you say things to influence others if you really need to, but one is a cat token and you can only miaow to do this. Sky Team is tense but so satisfying when you land your plane safely, especially in the different conditions! 

    Wing Span is a bit of an obsession with the expansions for something I've played once or maybe twice, and I even got Finspan (unplayed though I read the rules), and Wyrmspan for my daughter, as she likes laying out and organising the cards and all the eggs and cubes instead of playing the game. 

    I think I've watched most Ghibli films, and have a few art of books. Grave of the fireflies is soul-wrenchingly sad, but necessary viewing. I watched it once and sobbed through the whole thing. It's one of the few I haven't got on dvd, as if I get it I feel I should watch it again which is difficult, but is the sort of thing everyone should see once and I will need to address the hole in the collection sometime. 

    The first one I saw was Princess Mononoke, a powerful introduction. I love listening to the sound tracks, but the music from that film can be a bit too intense to listen to during work! 

    I got boy and the heron last year, but I think I need to watch it again as it's pretty out there. 

  • Hi Jeff, welcome to the community.  I'm late realised, not diagnosed.  I have faint chances of getting any assessment. One of your intrest is also mine- astronomy. Maybe I'm into it from a bit different angle,  but I'm reading and enjoying Neil Tyson DeGrasse (I read his books in my first language,  which is not English). I can't day I fully understand the bosons, hadrons and leptons, but its fascinating how everything got created out of a hot soup of tiny particles. And I love Jupiter and Saturn recently enjoyed watching about the Saturn's moon Titan, where the water ice is so hard like granite, but under the surface might be pockets of warm water 20*C and there are flowing rivers of .ethane and ethane and raining gasoline. Once I wrote a sci fi story about future human colony on Titan, where they used energy from the sources of the moon and created the colony under a dome. I also love Jupiter's moons Io because of its volcanic activity, when being pulled by Jupiter and also the other three Galeyan moons Europa Ganymede and Callisto. And I'm very excited to see if we find any forms of life on Europa or Enceladus and also if we manage to bring the rock samples from Mars to earth and see, if there was any ancient life on young Mars. Sorry for infodumping. 

    I hope you like this place.

  • I didn't know about the FireFox browser theme, I'll take a look. I haven't seen all of the Studio Ghibli films but Spiritied Away is one of my favourites. Grave of The Fireflies is good but one of the most depressing films I have seen.

    I own Wingspan but I've never played it.I've heard good things about Sky Team but I heaven't heard of Race to The Raft. I'll check it out, based on your recommendation. I like co-operative games.

    My board gaming stopped a few year ago, when I was dealing with burnout and depression. In many ways, I'm still recovering. Some of my gaming is on Board Game Arena, to try and help me recover.

    Pandemic and Agricola, are two of my favourites games.

  • Hi and welcome to the latelings club, I was also treated for depression, I thought in the end that I couldn’t have just been depressed and anxious since childhood, once the ‘penny dropped’ it all of a sudden made sense.

    I was diagnosed last year at the age of 57, sorry about Tottenham Hotspur, at least they won’t be wasting money on metal polish.

  • Oh it's hard to pick favourites, but one I've cherished most is probably spirited away (I have a browser theme for firefox with Chihiro flying with Haku.) Howl's moving castle makes me feel like a child though, and Totoro, well who isn't in love with that, we even went to see the stage show in London!! I was so desperate to see it, I even managed to organise us a trip there for it, I just had to organise everything in detail so I felt comfortable.

    Boardgame, I think it's Wingspan, even though i've barely played it, I keep collecting the expansions so I get all the bird cards (another big interest). We've played a lot of them though, favourite 2 player co-op at the moment is Skyteam, where two of you have to land a plane! Race to the Raft is also a lot of co-op fun, trying to get a bunch of cats off a burning island and onto the aforementioned raft. 

  • Welcome Jeff!

    I’m sorry to hear that you are probably experiencing burnout. Having that on top of depression and anxiety sounds like a horrible mix. Interesting though that it doesn’t affect you physically as much, though! That’s good. I’d say keep up with the exercise, that is probably helping a lot!

  • Hello  ,

    Thank you Slight smile.

    And thanks for providing a link for Autistic Fatigue and Burnout.