Thoughts about autism and BPD

Hi everyone,

I came across a thread on here talking about autism (particularly female autism) and borderline personality disorder (BPD). I noticed a few posters felt very indignant that they had once been diagnosed with BPD and felt that, once they got their diagnosis of autism, this eclipsed their BPD diagnosis and made it defunct. They didn't seem to think that one could have both at the same time. They think I've got BPD; the diagnosis was confirmed after a crisis where I had to spend the night in A&E, but it had been talked about for a while prior to this. I have a theory about it; I'm not a psychologist or any sort of MH professional so I don't know if I'm right, but this is what I have come to think about my own life.

A lot of people think that BPD is caused by trauma in the early part of childhood. I would never say that I suffered trauma...it wouldn't be fair to those who actually have. But I feel I've been damaged by my Asperger's. It caused the adults around me to try and sweep my issues under the carpet (my mum reckoned she knew since that I had autism since the age of 18 months, and yet did nothing to try and help, even though she supposedly loves me. I was just allowed to go around suffering, with no one doing anything to support me). At school, other children constantly abused me, pretty much from the day I started school. I was rejected, isolated and excluded. I was physically hit, kicked, pushed etc on many occasions throughout my school career, but there were more occasions when I was repeatedly laughed at. When I was very young, I was at a birthday party (I used to spend birthday parties crying because I felt so frightened and alone, and like my parents had abandoned me there; I also felt abandoned every day when I was dropped at school from my first day at playgroup when I was 3) and a little girl from my class got frustrated with me, agressively snatched off the sticky label I was wearing with my name on it, and tore it up and threw it on the floor in front of me. When I told my mum about this, she said, "It's because (this little girl) wants to be your friend, and you don't play with her when she wants to play with you." I took this to mean: "It's your fault she went for you." There were quite a few other incidents like that. This is how I know that I've deserved the abuse I've had over the years.

When I got to secondary school, I was very overweight and ugly as well as a defective freak. To mock me, boys would make crude comments, shove me against walls or collect around me in big gangs. They would touch me when I didn't want to be touched, sometimes hit or kick me, I was once spat on, I was once hounded into a room and had food repeatedly thrown at me, and, on all of these occasions, I would scream and cry for them to stop. It feels like this stuff happened all the time throughout my secondary school career, however, I never once school refused because for me, that was not an option. Sometimes when I close my eyes at night I still think about school and how hated I was for being less than what other children wanted. Even the kinder children were sharp and cold with me: I was a loser nobody wanted to associate themselves with, the bottom of the food chain, the weirdo, the nutter. When I try to talk to people about it, I get told to "move on." I feel invalidated, which apparently makes BPD symptoms worse. I ended up with an eating disorder, but because I was overweight when the restrictive eating started, my mum's friends would say things to me like, "You look amazing; a touch of anorexia never hurt anyone." They'd think they were joking or being complimentary but, as you can imagine, that sort of thing made the problem worse. Then my actual diagnosis happened which was a total nightmare and it was the "straw that broke the camel's back" - I knew I would hate myself forever and ever. Nobody ever acknowledged how much it hurt me.

I can't even begin to write everything that happened, and I'm too tired to try; I'm also kind of physically unwell today with this cold that's been going round. I know I deserved everything I got at school, but still, being different is painful. What I don't understand is why nobody agrees that it's potentially damaging. A friend of our family who is an autism specialist has told me that "growing up with autism is difficult, but it doesn't count as a proper trauma" - a) I never said it was and b) her saying that just felt like more invalidation. I've always struggled with my mental health but over the last year it has deteriorated significantly. I now can't get through a day without becoming very upset, or harming myself in some way. I lose control and have to resort to anti-psychotic medication to calm me down. Obviously being Aspie I find it hard to make relationships anyway, but the ones I have feel insecure and chaotic. I do not know what or who I am, apart from that it's bad. I have been told, and from what I have read believe, that I meet criteria for BPD. The actual term is problematic for some people, but I don't find it so: I found being labelled Asperger's far more humiliating. If Asperger's was a person, I'd love to hurt it. I am broken. I think it has caused my "BPD symptoms". I don't believe that my being diagnosed with it was a result of professionals misunderstanding of my Asperger's.

Does anyone else think this could be true? Not just for me, but for them?

  • ClaireHig said:

    You need to stop beating yourself up. 

    I'm sorry but that's quite simplistic. I don't deserve to give myself a break. I don't deserve to be happier. I'm a bad person.

    It's not that I don't do anything. I write and sing, and I'm told I'm good at those things but I don't feel good at anything.

    I just hate life, basically. I'm sorry to hear your mum didn't take an interest in what you went through at school, and for what your dad put you through. I do know that I'm lucky to have a great family, but they're the only people I've got. That makes me hate myself even more.

  • Fortunately I never had any side effects from meds. Though on the negative side meds never worked for me. I felt no different because the meds seemed too weak eg citalopram. I'm glad you've found meds helpful.

    To be honest I hated nursery & primary school too. And hated my mother for leaving me there. But I hadn't learned enough about social norms then to know I was being weird & was being rejected/bullied. My mother took zero interest, so I didn't tell her.

    I've been offered counselling, but seeing people would do more harm than good for me. For me I was just happy when it stopped. Though the DWP seem to be taking over the bully role now. 

    I've home educated my Neuro Typical daughter for 10 years. During which time I've come across many home educated children with ASD. And in many cases the ASD is co-morbid with other conditions such as Avoidant Personality Disorder, Pathological Demand Avoidance, Tourette's etc.

    You need to stop beating yourself up. You have gifts, you just haven't found them yet.

  • Hi, thanks for your reply. I've been doped for over two years now...first it was on antidepressant medication used quite regularly by lots of people (sertraline) but then things escalated and I ended up on anti-psychotics (quetiapine) and a mood stabiliser (lithium; I'd already been diagnosed with Asperger's over a year previously, was then diagnosed with bipolar disorder but to be honest now I'm wondering if it's more borderline PD). I do find the meds helpful - of course I don't love the side effects, being tired a lot of the time the time etc - and am not ashamed of taking them, either. I find it a bit irritating when people are really anti-meds, going on like, "Ohhh, you mustn't mess with your brain chemistry," it's like, "My brain chemistry is already messed up!!!"

    I'm so sorry to hear you had such a horrible time. You're clearly very brave for getting through it all. Have you had any support in coming to terms with the things you experienced? It's interesting that it sounds like you had a better time at primary school...primary school was hell for me.

    I'm glad you've found some light when it come to your Asperger's. For me, it just has no redeeming features at all, and neither do I.

  • Hi

    You're not alone. I was bullied too. From the day I started secondary school, until I left. It hadn't occurred much at my previous C of E primary school. So when I was physically & verbally abused everyday by everyone it hurt. I also had all of what you describe at school & more. The most polite thing they called me was freak. I was already being hit & verbally abused by my alcoholic father at home. So I literally had no safe place to go.

    Communication with parents is difficult. If you were deaf they'd learn sign language. But with ASD there isn't always an obvious visible problem/solution. My mother is still completely oblivious to the struggles I faced at nursery/school/work etc. In her eyes I'm always going to be lazy & weird.

    I don't hate my Asperger's. There have been times when my heightened senses have actually saved my child & I from dangers that others probably wouldn't have even noticed. It's a gift & a curse. But in all honesty I wouldn't get rid of my Asperger's even if I could.

    When I've felt as low as you I've taken meds too. There's no failure or shame in taking medication. If this was diabetes you'd just take medication & accept you needed it. It's the same for us. Sometimes the chemicals are out of balance & we need meds to stabilize our brain.