PIP assessment. Argh. Any positive stories?

Hello Forum People. 

I had my dreaded PIP assessment for my renewal a week or so ago. I currently get the enhanced daily living component based on a previous mental health issues only diagnosis but since then I've been diagnosed with Asperger's.

The assessment was worse than I expected. I was constantly cut off mid way through explanations and rarely allowed to finish answering questions. When I was able to answer a bit more fully I was asked 'why' again and again: 'why was I not under the mental health team?', 'why did I not receive help from an Asperger's service?' and 'why could I not do x or y?' - all questions beyond my understanding or control (ie funding cuts mean there is not an adult Asperger's service in my area). 

I am now panicking...a lot. My ESA is tied into my PIP benefit. I can't face losing either, let alone both. 

My question is: has anyone had any kind of positive stories about PIP, especially after such a negative assessment experience? I hope so... 

Thank you. 

Parents
  • I was awarded PIP early last month after applying in July.  I used a local service that was able to deal with all the filing and filling in the forms.  I was awarded PIP enhanced daily living and just missed out on standard mobility.  I did not actually have to attend an assesment and they also added the severe disability premium to my ESA. 

    I'm still worried about my ESA, while I have had support group 9 years in a row due to my situation not changing, I always get incredibly worked up even months before I know the form is coming.  Never happy :D

Reply
  • I was awarded PIP early last month after applying in July.  I used a local service that was able to deal with all the filing and filling in the forms.  I was awarded PIP enhanced daily living and just missed out on standard mobility.  I did not actually have to attend an assesment and they also added the severe disability premium to my ESA. 

    I'm still worried about my ESA, while I have had support group 9 years in a row due to my situation not changing, I always get incredibly worked up even months before I know the form is coming.  Never happy :D

Children
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