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PIP assessment. Argh. Any positive stories?

Jam_1 ️
over 7 years ago

Hello Forum People. 

I had my dreaded PIP assessment for my renewal a week or so ago. I currently get the enhanced daily living component based on a previous mental health issues only diagnosis but since then I've been diagnosed with Asperger's.

The assessment was worse than I expected. I was constantly cut off mid way through explanations and rarely allowed to finish answering questions. When I was able to answer a bit more fully I was asked 'why' again and again: 'why was I not under the mental health team?', 'why did I not receive help from an Asperger's service?' and 'why could I not do x or y?' - all questions beyond my understanding or control (ie funding cuts mean there is not an adult Asperger's service in my area). 

I am now panicking...a lot. My ESA is tied into my PIP benefit. I can't face losing either, let alone both. 

My question is: has anyone had any kind of positive stories about PIP, especially after such a negative assessment experience? I hope so... 

Thank you. 

Parents
  • over 7 years ago

    Sir_Dood said:

    Weird, gaining PIP for me was effortless (also having aspergers syndrome) the assesment was pretty succinct. What I am having issues with is getting ESA, mostly because of those who issue it are entirely incompetant, and because of their incompetancy and lack of help, i don't even know what I am entitled to.

    Back on topic however, it sounds to me like you just got stuck with a royal *** hole in the interview, who has no idea how to talk to people with our condition - try issuing as complaint and trying again, is my advice.

    Hi,

    I hope you don't mind me asking but did you send any evidence in for your claim? Did you send a diagnosis letter? If so, was it a thorough assessment report?

    And did you go to the face-to-face assessment?

    It seems wrong to demand to see people, when they know it will cause lasting harm. My PIP claim was refused because they claimed I didn't have good reason not to attend. But if I had attended I'd have been unable to answer the questions. And would've been left in shock & in bed for months. I'd also have distressing incurable flashbacks of the assessment for the rest of my life.

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  • over 7 years ago

    Sir_Dood said:

    Weird, gaining PIP for me was effortless (also having aspergers syndrome) the assesment was pretty succinct. What I am having issues with is getting ESA, mostly because of those who issue it are entirely incompetant, and because of their incompetancy and lack of help, i don't even know what I am entitled to.

    Back on topic however, it sounds to me like you just got stuck with a royal *** hole in the interview, who has no idea how to talk to people with our condition - try issuing as complaint and trying again, is my advice.

    Hi,

    I hope you don't mind me asking but did you send any evidence in for your claim? Did you send a diagnosis letter? If so, was it a thorough assessment report?

    And did you go to the face-to-face assessment?

    It seems wrong to demand to see people, when they know it will cause lasting harm. My PIP claim was refused because they claimed I didn't have good reason not to attend. But if I had attended I'd have been unable to answer the questions. And would've been left in shock & in bed for months. I'd also have distressing incurable flashbacks of the assessment for the rest of my life.

Children
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