PIP assessment. Argh. Any positive stories?

Hello Forum People. 

I had my dreaded PIP assessment for my renewal a week or so ago. I currently get the enhanced daily living component based on a previous mental health issues only diagnosis but since then I've been diagnosed with Asperger's.

The assessment was worse than I expected. I was constantly cut off mid way through explanations and rarely allowed to finish answering questions. When I was able to answer a bit more fully I was asked 'why' again and again: 'why was I not under the mental health team?', 'why did I not receive help from an Asperger's service?' and 'why could I not do x or y?' - all questions beyond my understanding or control (ie funding cuts mean there is not an adult Asperger's service in my area). 

I am now panicking...a lot. My ESA is tied into my PIP benefit. I can't face losing either, let alone both. 

My question is: has anyone had any kind of positive stories about PIP, especially after such a negative assessment experience? I hope so... 

Thank you. 

Parents
  • I have just had the pip tribunal 21st April 2019, it was brutal, they are totally insensitive to the needs of people with autism, I still feel traumatized by it and will do for a long time yet. They gave me the standard rate of pip which I am totally grateful for after reading things online. This doesn't excuse the total lack of understanding for people with autism, criminals are treated better!.

  • Mine was the opposite, they were really good with me and gave me the enhanced rate. I still had to recover etc but that’s just me, I have to recover from being round people I love, such as family, so that’s nothing new but they were really good with me and I was well prepared for it. DIAL prepared me really well for it so I knew what to expect. 

Reply
  • Mine was the opposite, they were really good with me and gave me the enhanced rate. I still had to recover etc but that’s just me, I have to recover from being round people I love, such as family, so that’s nothing new but they were really good with me and I was well prepared for it. DIAL prepared me really well for it so I knew what to expect. 

Children
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