Support for adults

Hi, I was diagnosed several months ago now, at the age of 32. I felt so understood when I was having my diagnostic assessment, however since receiving diagnosis, I have struggled to find support afterwards. Everything is aimed at children and not adults. I contacted somewhere that sounded promising however they wouldn't give me an appointment as I was outside of the area. I was so disappointed, it sounded like just what I needed, it was advertised as they "help you identify the gaps and barriers you are experiencing to receive the support you need". The area I live in doesn't offer this service. Now I am a bit lost. I filled out a PIP application as advised by the lady who assessed me however I don't want to do nothing, I already have depression and I think not having a job is making this worse. I am unemployed after leaving university as I was doing a course where I had to continuously mask, leaving me exhausted. Since leaving, I have struggled with no sense of purpose. Am I missing something, is there any services for newly diagnosed adults? I was hoping "finding myself" would be empowering however I haven't been offered any interviews since I started disclosing autism on my application forms to employers. I am also a mum of two. I want to be a good mum to my children but feel useless at this due to my fear/anxiety of social situations/crowds so I don't take them out much and try to give them everything they could want at home to compensate. My parents take them out to places when things are on however I feel guilty that I can't just be normal. Does anyone have any advice please? Thank you

  • It’s value to have the perspective of everyone you are looking to encounter, after all these are the guys who get the updates, and have the signposts, and have the reading lists. Sure it’s helpful to have mutual understanding with people like you on this forum, but they can’t offer you the full picture, neither can an education or professional services..

    I mean hell, here a dietitian article, who would squirrel that away but a pro..

    thespectrum.org.au/.../

  • If you found that you weren’t ready for CBT, then the talking route is likely going to be more useful for the moment, maybe counselling? 
    If you think that you don’t want to talk about present behaviours, and you’d like to account for your psyche and look for root-causes, then perhaps psychotherapy..?

  • Good luck with that. I hope you can find someone. I had a therapist with the NHS and he was awful. Didn't understand my autism and had me sectioned, seems to be their answer to autism for a lot of people.

  • CBT is complete, absolute bullshit. I am trying to find a decent therapist that does not cost an arm and a leg.

  • I’ve even got a link regarding independent mental health advocates.. I’ve got dozen or more decent signposts to things.. it’s just a matter of being prompted for me..

    www.mind.org.uk/.../advocacy-2018.pdf

  • Sadly most GPs have no understanding of autism. Have you tried a CBT specialist outside of the NHS? I've heard they can be helpful for some people.

  • I do not need that online course, I am not an educator or a social worker. 

  • As I said, I spoke with the GP and I was treated with six sessions with a completely untrained CBT operator. They did more harm than good, he had no clue about ASD

  • That’s the Level 2 course, the list of mental health courses they have are endless, you can do 6 per year..

    freecoursesinengland.co.uk/.../

  • Sorry to say there's little support out there for autistic adults. Try your GP see if they have someone you can talk to. You might get lucky and find someone with experience of autism. I found a doctor just like that, I was really lucky.

    I'm also lucky to have a very understanding mental health nurse who offers me a lot of support.

  • Have you found any available service or not?

  • When I was diagnosed several months ago, a foresaw that resources wouldn’t be easily accessible, so I attacked is from the mental health services side, the peer group side, and the education side. The results were that a was fairly-satisfied with my post-diagnosis arc, and I think I am pretty well informed on the landscape and future landscape of autism, though there is always something new to learn..:)

  • Save your money and go private. NHS just does not care. The best you will be given is six sessions with a bored, underpaid CBT practitioner with no experience or training in ASD.

  • Well I don’t know where your region or country is, so the best organisation I can think to signpost you to is GeniusWithin, they have some online seminars that you can enrol for, but the waiting list is first-come-first-served, so as soon as the month starts you’ve got to contact them, because the window for entry is about half an hour.. so you’ll have to get your elbows out for that one..:D

    Also if you are in the UK, if you just want to kickstart your productivity via your interest, you can sign up to freecoursesengland, and do the Understanding Autism Course Level 2, you won’t have to mask because it’s all coursework.. or if you are not in the mood for a half-marathon as it were, you can do a Level1 course in mental health perspectives or something..:)

  • I understand completely. It is almost cruel to expect people to just “adapt”. Hopefully gradually you will find yourself more and more. I understand about talking therapies too. If I am going to talk to someone in a therapeutic way, then it needs to be of benefit to me otherwise I am wasting my little mental energy on something that isn’t helpful. I use my time much more wisely now. I can’t afford not to. 

    Until you find some thing that helps, keep posting here and ask anything. I am new too and I have found it very helpful. X

  • Am I missing something, is there any services for newly diagnosed adults?

    There is little out there unfortunately, but this site has a weath of info and a user base rich in experience of dealing with the challenges.

    For the job applications I would not disclose on the application, only once the job offer is accepted.

    You are doing the right thing with your kids in not puting yourself in a position where you are damaging your mental health. Hopefully your partner and/or family can help with the social experience for them while you make the most of the home aspect. Don't feel guilty - autism is a disability and you have to know what is a sensible limitation for what you are able to do.

    Have you come to terms with your autism and read up on what it is all about?

    There are lots of things we can talk about here so what do you want to cover first?

  • Thank you for replying Tulip52. I wish there was someone like that in my gp practice but there isn't sadly. Gp has suggested talking therapies but this isn't what I need. I think my depression is partly due to masking for so long and not accepting myself, I was hoping there would be someone with a good understanding of autism who can help guide me. I feel like I don't even know myself and have to start all over again