Not sure where to turn for help...

Hi all, 
My brother is 45 and was diagnosed as having high functioning autism in the last year or so. We have known for a very long time that he deals with life differently but being born in 1977 means he has slipped through every net that might have been able to help us and him (not that there were many nets to slip through back then). Whilst he is 'high functioning' he struggles with life generally and isn't able to hold down a job. He has been out of work for a number of years now and my elderly parents are helping by supplementing his benefit. We are concerned about his future especially after our parents aren't around to help out (I can't help him unfortunately and live on the other side of the country). He is incredibly resistant to finding work and has a fair bit of debt.

Essentially we don't know where to turn for advice. Does anyone have similar experience and/or know who might be good to speak to?

Many thanks

Parents
  • Dear Ruth

    Just to give another angle on this - although i feel there is some existing suggestibility in another post.

    45 recently diagnosed and routinely continuing with a life long ASD predicament, which so often brings considerably awesome force of inertia. One day advanced databases might crunch the probabilities linked to ASD traits and have a way tp predict areas of weakness and an elucidation for staying relevant to go with it.. If so show ways for a more positive journey through life based on such metrics. Its a mystery wrapped in an enigma for now. ASD people of equal worth struggling to feel a full member of society rather than a disadvantaged side show and irrelevant human. 45 is still very eligible for work on one paper. On another page the probabilities are not so optimistic, such are the low level, but debilitating social phobias that dog people held back by disability for long durations. Much catch 22 here as the right thing to do is think work, and think emotional freedom due to work and all of the right stuff that flows along the responsibilty lines - quite rightly so. There isn't a rational alternative to this personal responsibility when it comes to someone still only 45. What else can one do ? - very little other than to encourage work considering that it shall be so remiss otherwise.

    On the other side of the coin the psychological forces are themselves strong. Regular and long term unemployment due to ASD causes a large range of deeply hurtful humiliation that is a remaining inertia quite often. I.E where NT people might change their disillusionment, and relegate the humiliation to spent, very often the inabilty to do this is part of the impairment with ASD people, and it leaves a permanent scare. We are also quite illogical from the emotional point of view. And here it helps a lot with respect to what we consider emotions to be. With ASD its not a straightforward as joy / sadness / jealousy / and so on. Much of the problem is in the learning difficulty itself is the convolutions going on in the fight or flight systems. For example - NT emotions are to great advantaged when they are not so hard wired to fear neurons. Most of those exist in the old brain,  the original primitive mind the modern brain grew on top of. And as we can imagine, the purpose of that old grey matter is not too different to what it was before = how not to get run over by a lorry - how to not walk into a wall. There is a lot more including the peripheral vision system & all the other very basic survival instincts. But it suffices it to say that though this region isn't the only area ASD have too much wiring to, the excessive connections are very disadvantageous.

    So what does the developing ASD do over time ? Quite a lot of improvement and successes come from the conscious mind work we do in order to counteract that - we do improve and adaptations are consciously made with education. The trouble is that ASD people also have a dysfunctional mechanobiological system. This refers to the way microcosmic pumps in the physical chemical brain move around the chemical fuels that make neurotransmitters. It is due to that chemically driven aspect of the brain that emotions are a law unto themselves if they want to be in all people. Much of the problems in the work today, arguably ? - are down to emotional regulation problems of some type. I'd say greed, particulatly corporate is a mechanobiologically driven mental illness. Whose going to agree - mainly the poor yes so we can see how much research grant goes in there. Possibly ? - this is the reason the very subject of Emotion is still in its infancy. We might evolve the emotional intelligence to explain away greed eh ?

    But on a more useful note. The ASD brain is not doing a tremendous job in delivery high quality glutamates et al to cells such as astrocytes that make the transmitters. So for instance anti D's work for some people by inhibiting every neuron, including those old brain fight or flight reflex types. Nothing is done about the dysfunctional mechanobiology by them. And in that sense people with the greatest sense of long term humiliation and emotional damage from huge unemployment tend not to be helped very much by anti depressants. Though they'll do generally reduce peripheral fear that travelled en route  from the chemical mechanics to the neurobiology that activate conscious thought and @@@ flags up some awareness@@@ - ( = i know i feel devastated to be in this place, but not why ) It doesn't help much given that an old brain mechanism responsible causing the root unconscious feeling, is a microcosmic pumping mechanism, and is immune as it will keep doing it given that mechanobiology is capillary.  Hence such people are generally good at getting out and about, but bad at being in the same sort settings that brought years of humiliation before. Being treated as a subnormal species unable to fit in & son on - really at worse the ASD person is disadvantaged by the emotional unconscious of a Dog with it comes to low level apprehension style fear neurons that make places psychologically acceptable. I'm not saying your relative is gripped by any of this, but it seems clear many are. It it were the case then often emotional damage is a key obstacle. Emotional energy is generally considered an unconscious matter.

    Whether one believes in the like of freud et al or not, most people tend to agree that in persons who suffered trauma,  those emotions are in charge, the person will not decide the feelings exist forever, they just will to a high, or hopefully diminishing degree. It is probably true to say that neuriplasticity also goes on in the old brain. If so then the experience of trauma makes new fear neurons there just like elsewhere.  Do acrobats not learn how to fall down more with practice?.  If this were not the case then it shall be very difficult to reconcile the neuroscience concerning the purpose of that region. The matter can be debunked yes, but the probabilities are high, and argument against this would actually disadvantage accepted theories that based on empirical findings of this type. Thus it is a fairly reliable notion that traumatic experiences build actual neuron assemblies specifically to process such trauma. As such there would also be long term memory back up. In that sense it is well known & universally traumatised people - can be different forms of profound trauma - have not much control over residue emotional outflow, and they live lives trying to avoid being triggered - often accidentally.. Emotionally ? - humiliation is a complex set of emotional binaries greatly based on bad sociological experiences. Whilst emotions themselves will always be chemically and mechanobiolocally manifested, unfortunately this does not prevent them reaching the conscious awareness. Thus they are neuroplasticised into neuron based brain mass to process the experiences in addition otherwise we'd never be conscious of emotions & they'd not even be need or exist for natural selection. That stands to reason and is a dichotomy dancing with paraconsistency.

    So im arguing very intensely for your relative on a tight rope. To the left the irksome fall into increased unemployment from 45 on that is pretty unreasonable. To the right the impairments - social phobias - the disgust at being treated those ways. And Above ? - just a hypothetical description of the ASD in neuroscientific like way that should be taken with a pinch of salt.  It doesn't help much i'd agree. It might help explode potent ironies linked to ideas such as '' how can such disadvantages cause these inabilities to come to terms with the employment world '' ? And Tbh its still an open question. Another is can someone literally feel humiliated enough and uncomfortable enough in order to become disarranged enough inside & emotionally to have the need to escape enough? Can a brain produce such resistance by triggering fear neurons and so on ? We need to have some way to understand how 'a fear neuron' - can in fact be a trigger that triggers another neuron, where 'Fear' taken literally is not a reliable guide when it comes to brain mechanobiology and mind neurobiology. Fear Neuron can mean 'Switch to Wiring' quite often, it might not send any fear to the conscious, but it will be on alert one fight or flight that can. That uneasy feeling messes with the conscious mind a great deal as we know due to stories concerning more widely discussed discriminations such as Race. Naturally the outrage of racial discrimination doesn't need an ASD, the whole story here is about affairs of the mind that convoluted & entangled. 

    its a very tough lifestyle & personal dilemma. i say so with every respect to you both, including your taking the trouble to post about it. Personally ? - from a counter intuitive standpoint have no idea what the best answer to this sort of predicament is. In fact the whole autism establishment is asking what the links between neurochemistry and neurobiology mean with these life long conditions. The long term unemployed with ASD are hard to understand. The main purpose of this post was an attempt to open it just a little regarding must surely be a perplexing thing for a neurotypical person to grapple with while  just trying to help someone they love.

    Good luck Ruth.

Reply
  • Dear Ruth

    Just to give another angle on this - although i feel there is some existing suggestibility in another post.

    45 recently diagnosed and routinely continuing with a life long ASD predicament, which so often brings considerably awesome force of inertia. One day advanced databases might crunch the probabilities linked to ASD traits and have a way tp predict areas of weakness and an elucidation for staying relevant to go with it.. If so show ways for a more positive journey through life based on such metrics. Its a mystery wrapped in an enigma for now. ASD people of equal worth struggling to feel a full member of society rather than a disadvantaged side show and irrelevant human. 45 is still very eligible for work on one paper. On another page the probabilities are not so optimistic, such are the low level, but debilitating social phobias that dog people held back by disability for long durations. Much catch 22 here as the right thing to do is think work, and think emotional freedom due to work and all of the right stuff that flows along the responsibilty lines - quite rightly so. There isn't a rational alternative to this personal responsibility when it comes to someone still only 45. What else can one do ? - very little other than to encourage work considering that it shall be so remiss otherwise.

    On the other side of the coin the psychological forces are themselves strong. Regular and long term unemployment due to ASD causes a large range of deeply hurtful humiliation that is a remaining inertia quite often. I.E where NT people might change their disillusionment, and relegate the humiliation to spent, very often the inabilty to do this is part of the impairment with ASD people, and it leaves a permanent scare. We are also quite illogical from the emotional point of view. And here it helps a lot with respect to what we consider emotions to be. With ASD its not a straightforward as joy / sadness / jealousy / and so on. Much of the problem is in the learning difficulty itself is the convolutions going on in the fight or flight systems. For example - NT emotions are to great advantaged when they are not so hard wired to fear neurons. Most of those exist in the old brain,  the original primitive mind the modern brain grew on top of. And as we can imagine, the purpose of that old grey matter is not too different to what it was before = how not to get run over by a lorry - how to not walk into a wall. There is a lot more including the peripheral vision system & all the other very basic survival instincts. But it suffices it to say that though this region isn't the only area ASD have too much wiring to, the excessive connections are very disadvantageous.

    So what does the developing ASD do over time ? Quite a lot of improvement and successes come from the conscious mind work we do in order to counteract that - we do improve and adaptations are consciously made with education. The trouble is that ASD people also have a dysfunctional mechanobiological system. This refers to the way microcosmic pumps in the physical chemical brain move around the chemical fuels that make neurotransmitters. It is due to that chemically driven aspect of the brain that emotions are a law unto themselves if they want to be in all people. Much of the problems in the work today, arguably ? - are down to emotional regulation problems of some type. I'd say greed, particulatly corporate is a mechanobiologically driven mental illness. Whose going to agree - mainly the poor yes so we can see how much research grant goes in there. Possibly ? - this is the reason the very subject of Emotion is still in its infancy. We might evolve the emotional intelligence to explain away greed eh ?

    But on a more useful note. The ASD brain is not doing a tremendous job in delivery high quality glutamates et al to cells such as astrocytes that make the transmitters. So for instance anti D's work for some people by inhibiting every neuron, including those old brain fight or flight reflex types. Nothing is done about the dysfunctional mechanobiology by them. And in that sense people with the greatest sense of long term humiliation and emotional damage from huge unemployment tend not to be helped very much by anti depressants. Though they'll do generally reduce peripheral fear that travelled en route  from the chemical mechanics to the neurobiology that activate conscious thought and @@@ flags up some awareness@@@ - ( = i know i feel devastated to be in this place, but not why ) It doesn't help much given that an old brain mechanism responsible causing the root unconscious feeling, is a microcosmic pumping mechanism, and is immune as it will keep doing it given that mechanobiology is capillary.  Hence such people are generally good at getting out and about, but bad at being in the same sort settings that brought years of humiliation before. Being treated as a subnormal species unable to fit in & son on - really at worse the ASD person is disadvantaged by the emotional unconscious of a Dog with it comes to low level apprehension style fear neurons that make places psychologically acceptable. I'm not saying your relative is gripped by any of this, but it seems clear many are. It it were the case then often emotional damage is a key obstacle. Emotional energy is generally considered an unconscious matter.

    Whether one believes in the like of freud et al or not, most people tend to agree that in persons who suffered trauma,  those emotions are in charge, the person will not decide the feelings exist forever, they just will to a high, or hopefully diminishing degree. It is probably true to say that neuriplasticity also goes on in the old brain. If so then the experience of trauma makes new fear neurons there just like elsewhere.  Do acrobats not learn how to fall down more with practice?.  If this were not the case then it shall be very difficult to reconcile the neuroscience concerning the purpose of that region. The matter can be debunked yes, but the probabilities are high, and argument against this would actually disadvantage accepted theories that based on empirical findings of this type. Thus it is a fairly reliable notion that traumatic experiences build actual neuron assemblies specifically to process such trauma. As such there would also be long term memory back up. In that sense it is well known & universally traumatised people - can be different forms of profound trauma - have not much control over residue emotional outflow, and they live lives trying to avoid being triggered - often accidentally.. Emotionally ? - humiliation is a complex set of emotional binaries greatly based on bad sociological experiences. Whilst emotions themselves will always be chemically and mechanobiolocally manifested, unfortunately this does not prevent them reaching the conscious awareness. Thus they are neuroplasticised into neuron based brain mass to process the experiences in addition otherwise we'd never be conscious of emotions & they'd not even be need or exist for natural selection. That stands to reason and is a dichotomy dancing with paraconsistency.

    So im arguing very intensely for your relative on a tight rope. To the left the irksome fall into increased unemployment from 45 on that is pretty unreasonable. To the right the impairments - social phobias - the disgust at being treated those ways. And Above ? - just a hypothetical description of the ASD in neuroscientific like way that should be taken with a pinch of salt.  It doesn't help much i'd agree. It might help explode potent ironies linked to ideas such as '' how can such disadvantages cause these inabilities to come to terms with the employment world '' ? And Tbh its still an open question. Another is can someone literally feel humiliated enough and uncomfortable enough in order to become disarranged enough inside & emotionally to have the need to escape enough? Can a brain produce such resistance by triggering fear neurons and so on ? We need to have some way to understand how 'a fear neuron' - can in fact be a trigger that triggers another neuron, where 'Fear' taken literally is not a reliable guide when it comes to brain mechanobiology and mind neurobiology. Fear Neuron can mean 'Switch to Wiring' quite often, it might not send any fear to the conscious, but it will be on alert one fight or flight that can. That uneasy feeling messes with the conscious mind a great deal as we know due to stories concerning more widely discussed discriminations such as Race. Naturally the outrage of racial discrimination doesn't need an ASD, the whole story here is about affairs of the mind that convoluted & entangled. 

    its a very tough lifestyle & personal dilemma. i say so with every respect to you both, including your taking the trouble to post about it. Personally ? - from a counter intuitive standpoint have no idea what the best answer to this sort of predicament is. In fact the whole autism establishment is asking what the links between neurochemistry and neurobiology mean with these life long conditions. The long term unemployed with ASD are hard to understand. The main purpose of this post was an attempt to open it just a little regarding must surely be a perplexing thing for a neurotypical person to grapple with while  just trying to help someone they love.

    Good luck Ruth.

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