process for diagnosis?

Hi everyone,

I'm 38/F, and after years and years of recurring problems in interactions at work and in personal relationships, and no real diagnosis of anything but intermittent anxiety and depression, lots of therapy, lots of isolation, and another failed relationship due to my 'behaviour', I started looking at asperger symptoms in women (my sister once suggested I was on the spectrum). (*see my list below)

I've made an appointment with my GP to get referrals to get some actual answers and a diagnosis so I can get proper help and support. Feeling pretty alone right now.

Question is - what do I say or ask for when I talk to my GP? Where do people normally get referred to for this and how does it work?

Thanks guys!

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* list...

- don’t do social chit chat, small talk, fitting in with social convention, when I do very formulated and awkward, like rehearsed lines, mask, my mind is somewhere else
- always struggled with social groups and dynamics, meta communication, don’t understand how they work, don’t understand or trust their motives, try and keep out of it on the periphery, always ends up failing to integrate somehow
- always felt like I don’t belong anywhere particular, like alien, because of my interests and way of thinking that people do not understand or find weird / intense / too much
- obsession with theories, analysis, everything is a case study and how I manage social confusion, can talk about it at length while losing people, count everything (colours, patterns, steps, objects),
- excellent detail memory when other people do not remember, excellent memory of structure and systems, connecting various fields of knowledge, love systems and categories
- repetitive behaviours: pulling hair, touching individual hairs for texture, touching face; thoughts (counting)
- can be very blunt, direct, because I think direct line to information makes most sense, not think it’s impolite, but perceived as rude or aggressive
- can’t initiate conversations well, like to withdraw from longer social situations
- bad at eye contact, always felt people didn’t like me / trust me because of it
- can seem emotionless and not show reaction to external stuff, shut it out, just be in my head, way to manage external stimuli, can’t deal with too much social demand or noise
- feel very isolated, hard to make and keep friends, always outsider at work despite being nice and competent, people always treat me like I’m weird
- struggle in relationships because of emotional overload, uncertainty, problems with change, emotional meltdowns, anxiety
- struggle to adapt to change in routine, competing demands, or when something that has been set is altered, really upsetting
- staying alone helps manage my own environment without stressors and feel safe, but very isolating
- been to therapy all my life, no difference, most problems related to interpersonal problems in work, friends, relationships
- problems with touch (overly ticklish or painful, intrusive), sounds, smells, can all be too much
- AQ score is 38

  • I did the 50 question test printed it off and was upfront with my gp and she gave me another test to do and after that she referred me and said I’d be surprised if you don’t have it.

  • I'm 45 and my GP appointment went like this:

    I think I may be autistic.

    So you think you may be autistic?

    I don't know that's why I'm asking you.

    No I mean what has happened to make you think you're autistic?

    I seem to be suffering from something like "list anxiety".

    What?

    Its like the cash till at work. A colleague skips steps to cash up and I started freaking out (to myself) that she missed steps even though it makes no difference to the way the till is balanced. I was at home and found that my wife had changed the garbage bag brands and it got so angry and didn't know why. The change itself was what upset me. I cant vary my routing when driving to work when there was a detour. I couldn't make up a new route, I could only put two different ones together even though it took me an hour out of the way. 

    Really?

    Yeah its been like this since university. I haven't been able to do any post-grad education. Its like I cant actually learn anything new. I cant even do aerobic. The poses change to quickly for me to keep up. Its as if all the stuff I used to do to get by isn't working anymore.

    Hmm OK let me open your file...You have a son.

    Yes.

    He's all grown up.

    No, he's 13.

    No I meant that he is a big boy now.

    ...I suppose he thinks he is. He is technically larger than he was a year ago.

    OK I think I'm going to refer you to northwest diagnostic services...

  • thanks for the advice - and wow, that is a long wait.

  • why don't you go with something like "I've been struggling a bit with lots of issues for a while, and the think I may be autistic. For example...." and quote a fee things from your list.

    The referral process varies a lot region to region. Expect NHS waiting times of 6 months-3 years!