I would like to know if anyone else gets the same type of sensory overload shut down as me.
I get overloaded most days and often it goes on to cause a shut down by which I mean I physically can’t talk because that would be too painful even though I often feel guilty of being rude around people. It’s an episode of intense fear where I then have to hide under bed clothes even if it is the height of summer.
Occasionally I get one other symptom which is that I cannot move any muscle of my body and am paralyzed in my bed for up to 2 hours.
All I can do is wait for the overload feeling to go, and afterwards I have to move and talk exaggeratedly slowly as to not set off another shut down.
Does anyone else have similar experience and how do they deal with it?
The first thing to say is that you are not alone in having shut-downs like these, and I have them myself. From what I have seen here and on other forums, shut-downs are almost as common for autistic people as the "explosive meltdowns" which are more often described as part of autism - I think shut-downs just get less attention from medical folk because they look less dramatic from the outside.
Shut-downs can take many forms, and each of us will experience them slightly differently, or have a different kind of shut-down at different times. You might find the article at the following link helps you to understand what is happening when you shut down - <link> Guide to Shutdowns.
From your description, it sounds like you more often have "partial shutdowns", with the "paralysis" that you describe being an occasional "full shutdown". This is similar to my experience. With most shut-downs I remain able to get myself to a safe place, but I'm often unable to speak and/or unable to understand other people's speech. However, if I can't easily escape from the situation, a full shut-down can follow, in which case I remain conscious, but completely unresponsive and unable to move or collect my thoughts. Afterwards, I desperately feel the need to sleep, and it can sometimes take several hours to recover.
In my opinion, the most important thing to begin with is to work out exactly which things cause the stress which begins a shutdown, and to try to understand how much tolerance to those things you have. There isn't always a single "trigger event" that causes a shutdown, it can sometimes be that things are slowly wearing us away until one last little tiny thing finally tips us over the edge. Sometimes dealing with other people can be one of these "slow build up" stresses, which can lower our tolerance to any sensory issues that we have. Other causes of stress in our lives, or even just a poor night's sleep, can also lower our tolerance. A shut-down is much more likely if we go into a situation with our stress levels already sky-high to begin with.
For many autistic people, the link between our body and our mind is sometimes not too good. This can mean that we easily miss the early warning signs that a shut-down is coming - we can get so focused on appearing "normal" to everyone else that we forget to read the sensations from our body that would tell us how stressed we are, or we might deliberately try to ignore them. As you say, once the shut-down begins, there is little that can be done until we recover naturally, so learning to spot the warning signs allows us to take action before that happens.
How to manage this so that it doesn't impair our lives so much will vary from person to person, but here are a few of the tactics which I use, which may give you some ideas to begin tackling your own shutdowns.
It may take some time to work out exactly what works for you, so be kind to yourself, and be sure to congratulate yourself for even the smallest improvements at first. Learning to manage the problem by itself helps to lower stress levels, as it reduces the "fear of shut-downs" and gives a sense of being more in control, so each small improvement makes other improvement easier to gain.
You do need to be realistic that maybe not every single shut-down can be avoided - it still happens to me from time to time when circumstances are too unpredictable to respond in time. But hopefully, by asking your question, you have set yourself on the road to some significant improvements.
I am so glad you have posted this thread as I am experiencing a lot of shutdowns lately. I was diagnosed nearly 12 months ago and didn't know that these episodes were linked to autism to start with (GP is still ruling other things out).
I had another one at work yesterday. Looking back I think it had been building, I just hadn't noticed. I had been hypersensitive to noises a couple of days previous and had been sleeping with ear plugs to help me sleep better. In addition, I was finding that I was becoming more agitated with my partner and other things, as well as becoming more obsessive about things such as housework and how things are organised (this is normally something I take pleasure in). So to cut a long story short, yesterday I awoke to feel very fatigued, like my body was made of lead. My head was fuzzy and I couldn't think straight. I had already had a couple of days off work last week and the previous week for hospital appointments, so I felt guilty about working from home and decided to go in and battle through it. I felt spaced out on the way to work and when I greeted the first person in the office, what I meant to say came out all jumbled. I had to try again to make sure my message was relayed properly. Then I noticed I was slurring my words and saying words in a sentence the wrong way round. My memory also suffers prior to a shutdown, where the same thing happened yesterday. I can't remember names, places, words for certain objects, whether I have completed a task....normally my memory is the only thing that gets me by so this throws me off!
Then I before lunch I started to feel spaced out and not with it. I put it down to needing food (I am sensitive to feeling hungry and not eating regularly) so went to the canteen to get lunch. The noise in the canteen was overwhelming, so much so I had to leave. Then I tried to run an errand within the premise, but the noise from a radio and the sun blaring down on me as I walked between buildings was just too much. This is when I started to realise something was wrong and I went to find a dark empty office to compose myself. It was at this point I just wanted to withdraw, not talk or see anyone. After about 35 minutes, things seemed to improve, so in my usual stubborn way I convinced myself I had beat it and that I could carry on with work. At my desk I slurred at some colleagues who told me to go home, but in reality I just wanted to be left alone. It was then that my mind wouldn't focused, I kept spacing out and I started to feel really unwell. I Skyped my boss to say I wasn't well and needed to go home and that's when it hit me like a brick!
I felt a wave come over me and realised I didn't feel in control of my body. My limbs felt heavy and stiff and when my boss came over, I couldn't talk and he realised I was at crisis point. He moved me to an office, but I felt faint and nearly dropped to the floor. I sat on a chair and the lights seemed really bright, the air con sounded like it was in my head and I couldn't get my words out. Luckily, my boss handled it well and helped to calm me, but from the outside it looks like I am having a stroke.
It takes about 40 minutes for me to be able to start talking slowly again and be able to process simple things. I went home and went straight to bed as I felt like I had been hit by a bus and my head ached.
Light and noise was unbearable and I was very agitated.
Today I am fatigued and feel sensitive. My boss has told me to rest, but the whole thing is becoming very frustrating. Everyone keeps asking me what triggers them, but I don't know and I wish I had the answers.
thank you so much for all that imfomation. its helped me so much as have now been able to show details to my family so they can understand a bit better what I go through. I've never been able to explain before and its reassuring that I'm not alone and its very common - No doctor or psychiatrist has ever known what it was that was going on in 35 years
all the best to you and may grateful thanks again