In shock at new diagnosis. How did you all feel?

Long story short my son has had noticable problems since he started nursery at the age of 2 cut to now hes just turned 5 and i was told by his consultant he would see him once more after he turned 5 and then take him to the panel. So yesterday we went to this app which was meant to be the last before panel and was floored to say the least when he just came out with diagnosis of asd. If im honest i think i am still in shock . I am gutted and ive cried and i worry that now hes got this label for life and thiers no more " he might grow out of it " . 

Im happy as i no we can reach out for support now with this im scared because qe have faught this battle on our own for so long to let new people in

 I dont really no where we go from here either  he gave me a number for a course n said he qould get intouch with certain people to get intouch with me but nothin spercific as such then said he would be discharging him as his only job was to diagnose him.   

Where do we go from here ?what happens. I heard every autistic child should have a keyworker is this correct . If so from where and what do they do ? Im so confussed right now if im honest im finding it hard to process. Weve known for a while but having it in black and white is hard to see. I love him god i love him so much and wouldnt change him for the world i gyess im after advise to see what others did after diagnosis. Will it help or isit allways going to be a battle 

Parents
  • This is very early doors. You have to give yourself time to honour and process your emotions, which are naturally shot through right now. This is a huge blow. I would seriously, first of all, advice seeking out some counselling. You won't need much and they don't have to be highly skilled. You just need somebody, outside of your family or friends circle, to bounce this off. You need to get this out of your system now but give it the respect and time it deserves.

    This can be seen as being akin to grief, after a loved one dies. Because in some ways, it is. But only of the ideas we held of what we wanted for our children. Your son is an extra special gift, because he's going to take you on a magical journey, if you're up for it. And I think you are. But first of all, you have to honour your feelings and those feelings that all parents share. After that, the way forward will look clearer. But once you get into it all, you need to be strong, and have a strong network, such as a local parents group. But all that can wait, because once the information starts streaming in, it can cause overload, so you need to be prepared.

    Your little boy is safe and well. He has got his mummy who loves him to the ends of the earth, now is the time for you to take some time to process all this. Your gp surgery will be able to refer you for counselling but tell them you need the support now. This is your time. Honour your losses, to prepare and open the way for a life more marvellous, than you could ever have imagined. I promise you that. Much love to you and there's a reason why he is with you, it's because your the best mummy in the world for him but for now, you need to take care of you X

Reply
  • This is very early doors. You have to give yourself time to honour and process your emotions, which are naturally shot through right now. This is a huge blow. I would seriously, first of all, advice seeking out some counselling. You won't need much and they don't have to be highly skilled. You just need somebody, outside of your family or friends circle, to bounce this off. You need to get this out of your system now but give it the respect and time it deserves.

    This can be seen as being akin to grief, after a loved one dies. Because in some ways, it is. But only of the ideas we held of what we wanted for our children. Your son is an extra special gift, because he's going to take you on a magical journey, if you're up for it. And I think you are. But first of all, you have to honour your feelings and those feelings that all parents share. After that, the way forward will look clearer. But once you get into it all, you need to be strong, and have a strong network, such as a local parents group. But all that can wait, because once the information starts streaming in, it can cause overload, so you need to be prepared.

    Your little boy is safe and well. He has got his mummy who loves him to the ends of the earth, now is the time for you to take some time to process all this. Your gp surgery will be able to refer you for counselling but tell them you need the support now. This is your time. Honour your losses, to prepare and open the way for a life more marvellous, than you could ever have imagined. I promise you that. Much love to you and there's a reason why he is with you, it's because your the best mummy in the world for him but for now, you need to take care of you X

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