I am so drained and life feels exhausting

Hi, my daughter is 4, almost 5, and I feel just as you describe! I feel zero energy, I feel like she sucks my energy away and I have no time for my other kids because when I try she goes mental. I feel mentally and physically drained and I don’t have anybody else to help me. 

I can say one thing though some days are easier than others, and usually it is a trigger that sets us off on bad Days/weeks. For example she was doing really well for about 3mpnths until she was told by a social worker her dad wants to see her again (this was 5weeka ago) and still she is disruptive and can see a massive change I. Her behaviour!

i think as life goes on you will notice the triggers and be able to avoid them but as our children are still young we may have a few years of never ending battles ahead haha! 

Sendingg you hugs and healing wishes hun!

xx

Aww thank you so much for your kind words. 

Yes it’s just very frustrating. As you described you feel like you don’t spend enough time with your other children as they are either sucking the life out of you or taking up all your time and attention and this I feel guilty for. It keeps me awake at night I think oh I don’t spend enough time with so and so today or I don’t think I played with the baby enough or did I tell my kids enough that I love them today. I just feel like a useless mother.

i avoid going out public places as much as i can as when things trigger and it all becomes too much sensory overload there is no stopping him. People stare, whisper, shake their head or just think you can’t cope. They judge without knowing that he’s got a disability even though it’s not a visable disability. Thank god we have a garden ha ha. 

I am wondering whether to contact social services myself to see if they can provide some sort of help and support

xxx

Aww thank you so much for your kind words. 

Yes it’s just very frustrating. As you described you feel like you don’t spend enough time with your other children as they are either sucking the life out of you or taking up all your time and attention and this I feel guilty for. It keeps me awake at night I think oh I don’t spend enough time with so and so today or I don’t think I played with the baby enough or did I tell my kids enough that I love them today. I just feel like a useless mother.

i avoid going out public places as much as i can as when things trigger and it all becomes too much sensory overload there is no stopping him. People stare, whisper, shake their head or just think you can’t cope. They judge without knowing that he’s got a disability even though it’s not a visable disability. Thank god we have a garden ha ha. 

I am wondering whether to contact social services myself to see if they can provide some sort of help and support

xxx

I don’t know what it is like where you live but over here we have early help which can get you support. I am currently on the waiting list for a support worker. Also there is a corse called triple p which is a bit like a parent corse but not as such, it is designed for parents of children with disability’s to help us understand the behaviours better and give us advice on new tactics, I start this corse at the end of April. I can’t wait because I feel at my wits end haha. 

I think my daughter has ADHD as well but they won’t look at that until she is 7 because apparently the autism and ADHD symptoms are to similar to look at adhd as well now she has the autism diagnosis. It is a never ending spiral to be fair. 

I felt that as soon as she was diagnosed that was it, I had to push and push for support it took me 11months!! Which is a bit poop :( 

i hope you manage to sort some support. There is a group as well for siblings of autistic children which is really good, that’s well worth enquiring about. If you google things in your area I’m sure loads will come up.

stay strong xx