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Preparing my son for 1st diagnosis/support meeting

Quint
over 6 years ago

My son is 9 and we believe that he is on the ASD spectrum. He struggles to process and control his emotions when confronted with change - often resorting to violence against others in his family or himself. He can relate to others emotionally and has formed friendships but seems overwhelmed at times by anger and sadness when there are small changes to what he perceives as the routine e.g. visiting a supermarket.

We have got a referral for CAMHS on Dec 19th and my wife and I have to bring Sam with us. We have tried to ask the CAMHS team how to prepare him for the session or what to tell him about why he is being taken out of school. They have no materials and no advice for us - which surprised me enormously - so I was wondering if anyone else has faced this and what they did?

I am also interested in hearing about anger management techniques to defuse and de-escalate his rages - what do you use? We are trying distraction and humour with mixed results.

Thanks

Parents
  • over 6 years ago

    Hi Quint,

    Hopefully there'll be some more community members able to share their personal experiences and offer some help.  In the meantime, in terms of useful pages on the NAS website, I would point you towards the diagnosis for children page which you might find handy.  It has a section on "after diagnosis" and how to tell you child with a link to books etc.  I know it isn't a perfect fit for your question but you may be able to adapt some of the information there to support your son prior to the assessment: http://www.autism.org.uk/about/diagnosis/children.aspx 

    Also there may be some useful information for you on defusing problems that you describe on the behaviour management/ meltdowns page: http://www.autism.org.uk/about/behaviour/meltdowns.aspx 

    Good luck with the assessment in December.

    Warm regards,

    Heather - Mod

Reply
  • over 6 years ago

    Hi Quint,

    Hopefully there'll be some more community members able to share their personal experiences and offer some help.  In the meantime, in terms of useful pages on the NAS website, I would point you towards the diagnosis for children page which you might find handy.  It has a section on "after diagnosis" and how to tell you child with a link to books etc.  I know it isn't a perfect fit for your question but you may be able to adapt some of the information there to support your son prior to the assessment: http://www.autism.org.uk/about/diagnosis/children.aspx 

    Also there may be some useful information for you on defusing problems that you describe on the behaviour management/ meltdowns page: http://www.autism.org.uk/about/behaviour/meltdowns.aspx 

    Good luck with the assessment in December.

    Warm regards,

    Heather - Mod

Children